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ramdem11 avatar

BK virus and post kidney transplant patient

Transplants | Last Active: Jul 12 8:37am | Replies (6)

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Profile picture for Cheryl, Volunteer Mentor @cehunt57

@ramdem11 welcome to Mayo Clinic Connect. Congratulations on your kidney transplant. I had a pancreas transplant nearly 20 years ago. There were so many post transplant labs at first to watch for any signs of rejection &/or complications. During the first few months post transplant I developed an infection. It was so long ago now I don’t remember what exactly it was. I do remember having a PIC line installed so that vancomycin (sp?) could be administered at home. It took a second surgery (to relocate my transplant - long story) and about 6 more months to resolve. That was a long time ago and a different kind of transplant. What I want to convey is that there’s hope. Dr’s have more experience with kidney transplants. There are lots of ways to test for and treat viruses. Have you asked your provider if there might be a more effective medication to try? How are you tolerating the cidofir IV’s? Have you considered getting a second opinion?

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Replies to "@ramdem11 welcome to Mayo Clinic Connect. Congratulations on your kidney transplant. I had a pancreas transplant..."

Thank you for your response, I asked about the pic line and they are afraid of any infection That may occur, I am a patient of NYU, which is one of the top hospitals and doctors for kidney transplant, my blood numbers are all good within normal limits and my creatinine level is good so so that seems to baffle me, I trust my doctors. I just wish that there would be more research done on this BK virus since they are treating it as they did 50 years ago when it first came to their attention, keeping up hope and thanking God that I do have a second chance at life. Happy for you that your transplant is a success for many years and many more to come