Did PAXLOVID also relieve your arthritis and autoimmune symptoms?

Posted by annewoodmayo @annewoodmayo, Jul 15, 2023

Hi, everyone

I have been diagnosed with autoimmune diseases.
The diagnoses have changed over time (lupus, not lupus, spondyloarthropathy, akylosing spondylitis, rheumatoid arthritis, psoriatic arthritis, Raynaud's, Sjorgren and maybe others that I have forgotten... sorry about the spelling).

When I took Paxlovid for Covid, many of my symptoms disappeared or were significantly reduced.

Has this happened to anyone else?

I'm thinking that perhaps my autoimmune disease is somehow based on a VIRUS, since paxlovid is an anti-viral and it was like a miracle cure for my symptoms.

I told my rheumatologist about it, but I couldn't get her to focus on the logical connection between the anti-viral (paxlovid) and the reduction in my symptoms. It was very frustrating. I actually cried in my car after the appointment.

I think this could be a game-changing piece of evidence in my medical treatment and diagnosis. And maybe for other autoimmune disease sufferers, too! But I don't know where to turn with this evidence.

What do you think I should do? What doctor should I go to?
My primary care doctor probably won't offer anything; he never intervenes in my rheumatological care.

Please let me know if you had the same experience: an anti-viral medication (paxlovid or another one) reduced your autoimmune/arthritis symptoms.

I searched around online, and it was hard to find and hard to understand information there. In the CDC's PubMed, I found one source that indicates the possibility that immune suppressing medications can reactivate the Epstein Barr virus in some patients. Epstein Barr causes fatigue, among other symptoms, but fatigue is one of my worst symptoms.

Thanks!

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for annewoodmayo @annewoodmayo

jbsheen,
OMG ! You have made my day, my week, my year!!!
Thank you so much for taking the time to reply and to follow up!!!! I can't use enough exclamation points. You have given me HOPE !
It was brilliant of you to print out these posts. The more evidence the better. So many scientists reject anecdotal evidence out of hand. There is power in numbers.

My daughter's name is Jane 🙂

Please keep us posted, even if it is bad news.
THANK YOU!!!

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I'm so glad I posted. I live in the Virgin Islands. I find that sometimes because the medical community is relatively small, we tend to have closer relations b/w Drs and patients. Many of us have both personal and professional relationships.

I was named after my mother.

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Profile picture for jbsheen @jbsheen

I'm so glad I posted. I live in the Virgin Islands. I find that sometimes because the medical community is relatively small, we tend to have closer relations b/w Drs and patients. Many of us have both personal and professional relationships.

I was named after my mother.

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I never met a "Jane" I didn't like! That's why my husband and I agreed-- finally-- on a name for our daughter.

Doc-patient there-- sounds really nice.

I'm so glad you posted, too!

Hoping you have a safe weather season down there!

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Profile picture for jbsheen @jbsheen

I'm Jane - I posted maybe a year ago or more indicating that Paxlovid had completely eliminated my pain from erosive arthritis. I continue to be essentially pain free. I shared that info with my rheumatologist and other Drs. All of them took me seriously and agreed with the autoimmune idea. I also made contact with a friend who is also a scientist for Pfizer. She paid attention to me and asked lots of question. She also contacted me later and had me write a complete description of my diagnosis and my experience with paxlovid. I did so and also sent her a printout of all comments on this thread. That contact was within the last couple of months. I have heard nothing further, but will try to follow up.

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Hi Jane, would uou be able to share these printouts (if they're digital). I'm going to my rheumatologist at the end of this month and I've been thinking.. "I wish I could show her all rhese comments!". If that's not possible, I will figure out a way on my own 🙂
I am sooo happy to hear about the results you achieved!
Forever hopeful,
Nance

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Hi Nance - I am trying to reconstruct how I sent the info to my friend. I may have just sent a link to the entire discussion. To do that you click on the 3 dots that appear at the end of every post. If you scroll up a bit ( be patient) you will come to a spot where you can arrange the entire discussion from oldest to newest. You could do that and just print the entire discussion (have plenty of paper available.) I experimented and that will work, but every page has some extra stuff like emails address etrc and that. come out vertical. The whole discussion will take 8 pages to print. Why don't you try both saving the link and printing and see what works best for you.

Good luck! Get back to me if you have any problems.
J
Jane

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Profile picture for gkdew2 @gkdew2

Paxlovid also gave me back my taste but I lost it again when off the meds. I truly believe the anti viral will be found to improve symptoms

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Paxlovid also gave me my taste but I lost it again when off the meds. I mention it to every doctor but they just dismiss it.

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Yes!! I have been trying to tell everyone I know I have rheumatoid arthritis and when I was on Pax of it for Covid, my symptoms went away completely!

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I would also like to add to the comment that I told my rheumatologist and she didn’t seem to care. I also told my regular doctor.

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Profile picture for jbsheen @jbsheen

I'm Jane - I posted maybe a year ago or more indicating that Paxlovid had completely eliminated my pain from erosive arthritis. I continue to be essentially pain free. I shared that info with my rheumatologist and other Drs. All of them took me seriously and agreed with the autoimmune idea. I also made contact with a friend who is also a scientist for Pfizer. She paid attention to me and asked lots of question. She also contacted me later and had me write a complete description of my diagnosis and my experience with paxlovid. I did so and also sent her a printout of all comments on this thread. That contact was within the last couple of months. I have heard nothing further, but will try to follow up.

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I wish my rheumatologist would take me seriously I would like to have Pax of it again cause my symptoms have returned

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Profile picture for taragray @taragray

Yes I have an undiagnosed autoimmune illness with Fatigue and joint pain that started after I had a bilateral mastectomy and reconstruction surgery. Everyone said it was a result of the cancer treatments and surgeries. I had Covid and took the Paxlovid and for the first time in 18 months I felt like my old self. My fatigue and joint pain were greatly diminished. I told all my Doctors..primary care Dr, Rheumatologist, my oncologist and my plastic surgeon. They were not able to draw any conclusions. I contracted Covid again about a month ago and had the same results while taking the Paxlovid. I have been trying to research why it mitigated my joint pain and fatigue. . I’m not sure of the mechanism in my situation, however, it makes me wonder if this antiviral medication which is designed to decrease the viral replication/load, therefore also would then decrease inflammation due to said lesser viral load and provocation, as C-19 causes immune response inflammation.

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Same thing happened to me. It instantly took my pain away from rheumatoid arthritis.!

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Profile picture for jbsheen @jbsheen

Hi Nance - I am trying to reconstruct how I sent the info to my friend. I may have just sent a link to the entire discussion. To do that you click on the 3 dots that appear at the end of every post. If you scroll up a bit ( be patient) you will come to a spot where you can arrange the entire discussion from oldest to newest. You could do that and just print the entire discussion (have plenty of paper available.) I experimented and that will work, but every page has some extra stuff like emails address etrc and that. come out vertical. The whole discussion will take 8 pages to print. Why don't you try both saving the link and printing and see what works best for you.

Good luck! Get back to me if you have any problems.
J
Jane

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Thanks for the reply Jane! I will let you know how I make out ❤️

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