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Creaky body, some bone pain - new since thyroidectomy?

Posted by kmlnj @kmlnj, Jul 5 1:15pm

Hi. I did search to see if this has been asked.
I am post thyroidectomy & neck dissection. Post 35 radiation treatments and 6 chemotherapy. I take levothyroxine.
The issue is my legs ache. In truth, my whole body aches. My endocrinologist said its not her area of expertise to address this.
The aching is new. But I am 72.
Last calcium check months ago was 9.
Thoughts? What course of action, self healing?

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sandy8043 | @sandy8043 | Jul 7 2:16pm
In reply to @gillsden "I posted a similar question a couple of months ago. Bad leg pain, muscle ache, fatigue,..." + (show)
Profile picture for gillsden @gillsden

I posted a similar question a couple of months ago. Bad leg pain, muscle ache, fatigue, weight gain. My endocrinologist basically blew me off and said that none of it was related to my thyroidectomy. I explained to him that I did not have any of this prior to my surgery. He of course, said, based on the TSH levels that was not the reason for my symptoms. I was definitely dismissed. I sent an appointment with my rheumatologist, and she said that the thyroid could possibly be related because anything can happen. I’ve been to a functional Doctor Who prescribed all sorts of supplements. I hear all of your frustration and wish I had answers for all of us.

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I personally think the bloodwork and "Normal" levels are not sufficient for some of us. So many women say they have symptoms of low thyroid on levothroxine but their bloodwork says they are "Normal".

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rockon79 | @rockon79 | Jul 7 4:14pm

In briefly checking your posts (@klmnj) I did not notice if your parathyroid glands were removed or negatively effected by your surgery. These glands can have everything to do with the way calcium is used in the body. Misuse of calcium can manifest in anything from aches and pains to osteoporosis. Jut a though! If these problems not in your endo's specialty maybe she should recommend someone else.

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kmlnj | @kmlnj | Jul 7 8:17pm

Hi. No parathyroid removal or impact at surgery. I did have 2 lymph nodes removed. After surgery I was put on 6000 units of calcium daily (tums). My calcium blood tests were normal.
I have since reduced supplement calcium to about 1000 daily. I hope I get the balance needed in my diet.
But good point about calcium.

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gillsden | @gillsden | Jul 8 8:07am

Here’s another strange question. Anyone suffering from insomnia since thyroidectomy and starting synthroid?

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kmlnj | @kmlnj | Jul 9 8:11pm

No insomnia. I think I sleep better since my thyroid and tumor were removed.
If I do have a restless night. I take 3mg melatonin or chamomile tea.
They both help.

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kmlnj | @kmlnj | Jul 9 8:13pm

I reached out to my pcp about my "bone pain". He responded that my endocrinologist should be handling this.
But my endocrinologist said - not her area.
I will have to follow up again.

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kmlnj | @kmlnj | Jul 10 6:59am

Wow. Lots of info. Thanks.

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rockon79 | @rockon79 | Jul 12 9:25pm
In reply to @kmlnj "Hi. No parathyroid removal or impact at surgery. I did have 2 lymph nodes removed. After..." + (show)
Profile picture for kmlnj @kmlnj

Hi. No parathyroid removal or impact at surgery. I did have 2 lymph nodes removed. After surgery I was put on 6000 units of calcium daily (tums). My calcium blood tests were normal.
I have since reduced supplement calcium to about 1000 daily. I hope I get the balance needed in my diet.
But good point about calcium.

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Eventually for proper calcium absorption about 500mg of magnesium (chelated if possible) might be added. Also think about adding about 1000 to 5000iu of vitamin D. I certainly can't prescribe, but I know what works for me.

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olivesn | @olivesn | Jul 13 4:45am

Have you had your t3 levels tested as well as t4? Sometimes doctors skip t3, and it's very important. Often times people are in need of t3 supplementation after thyroid removal. You could see what the levels are and maybe try a very small amount. Low thyroid is definitely associated with body aches and pains.

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