← Return to ANCA GPA with mastoidectomy. Can infection be there again?

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Hi Cheryl, So sorry for all you have been through. I too had ear infections as a child. I am 65 now, 10 years your senior, and yes, I had COVID 2 times confirmed - once very mild, and once much more severe. I also had pretty bad reactions to the Booster shot. And I am glad to have someone to chat with also.
I have been fortunate not to have had meningitis to date but this ANCA GPA stuff is crazy. Have they tested you for it? It can affect just your sinuses or just your lungs or just your kidneys or two or three or many more organs. And the problems you had with choleatomas, I actually have an 18 year old nephew who had surgery when he was about 10 for that issue. So frightening the things that can accidentally happen during surgery. That pin hole changed your life. And yes, I am afraid now that the other ear is getting infected since I didn't have "classic" symptoms before.
Thank you so much for reaching out to me and I look forward to hearing from you again. Praying for good news for BOTH of us!
Godspeed,
Melody

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Replies to "Hi Cheryl, So sorry for all you have been through. I too had ear infections as..."

I have not been tested, actually never heard anything about it. However after researching it I am definitely going to be tested. It fits so much of what I'm experiencing. I've always thought that a lot of my symptoms were related to vascular issues, R enlarged jugular vein, R enlarged collateral vessels in my neck. R sided partial paralysis when swallowing as well as difficulty with intubation. All since last Covid.
I have cervical stenosis with cord compression but neurosurgeon (saw just past Monday) said surgery is my only option but..... I failed all neurological tests and that has to be addressed and treated before he would consider any surgery.
So now it's all a wait and see game.
I'm very surprised, happily, that your grandson hasn't had any other issues with cholesteatomas. I had numerous prior to the radical mastoidectomy.
Prayers for you and your family.
Thank you for sharing your story and I will keep you posted ❤️