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Profile picture for pamp56 @pamp56

Hi, I was diagnosed with a non functioning pituitary adenoma just over a year ago however there were very few symptoms until recently. I had an MRI in May 2025 that showed the adenoma had grown to 2 cm within the year & now I'm experiencing facial pain, headaches, muscle pain & weakness, fatigue, tremors, joint pain & I pass out all the time! I get very tired and shortly after, I pass out, mostly in my chair but I've passed out a couple of times on the kitchen counter & of course, the toilet. I'm waiting for approval to see a neurologist outside of my health network but I'm going to try to move it along a bit faster - if I can stay awake long enough to do it! I hope you can get some answers to your issues as they are allot like mine. If I get news about it I'll keep you apprised & would appreciate you to do so also. I look forward to some good news soon!

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Replies to "Hi, I was diagnosed with a non functioning pituitary adenoma just over a year ago however..."

I truly emphasize with your condition. My only suggestion is: you are your best advocate. Be the squeaky wheel for yourself. Please check in from time to time.

Hello @pamp56 and welcome to Mayo Connect. I am sorry to hear of these new symptoms that have developed. I'm sure that must be frustrating for you. I see that you are looking for a referral to a neurologist. Have you already consulted an oncologist? I found some interesting information from the American Cancer Society website about treatment for these non-functional pituitary tumors. Here is a link to that information, https://www.cancer.org/cancer/types/pituitary-tumors/treating/non-functional-tumors.html

After reading the article, I noticed that there are treatments such as surgery, radiation and chemotherapy. Have your doctors recommended that you see an oncologist?