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DiscussionRestless Legs - Any suggestions as seen many doctors and medications
Sleep Health | Last Active: Jul 11 1:32pm | Replies (98)Comment receiving replies
Replies to "About 45 years ago (late 1970's) a doctor told me he thought I had RLS...who the..."
Dear 3 Dogs: I don't want to monopolize this thread (after the long posting I just made), but I do want to reach out to you and sympathize. In terms of the severity of my symptoms (unfortunately) I do think I match you. But, not the surface area that causes you to suffer. I am not a complainer---I doubt you are either. RSL is a hard row to hoe. Like you, my experience varies greatly, day to day. It was so helpful for me to read that you have the same lack of consistency. Although the sleep experts warn against heat in bed (circadian rhythm changes our body temperatures over a night and my sleep neurologist tells me my electric blanket causes wakening----but it does give me comfort. In the winter, I often sleep with a heating pad that automatically turns off). Your medication (tramadol) and mine (buprenorphine) are both opiates (because opiates work and because we have good doctors, thank goodness). Like you, my iron is mostly normal on labs, but I did try iron IV and it did nothing to change my symptoms. I don't know why I don't fit what is expected of someone with RLS, but it helps me to know neither to you (exactly) My heart goes out to your woes. I tried a CBD gummy once (before I was put on effective medication) and I lay awake all night with a racing mind and RLS symptoms. For me it didn't work, but I understand why you tried this and I'm glad it works for you. Your posting has helped me understand beyond what I read and what I experience myself. I'm sending you a hug and hope you will continue to share on this forum...