Tymlos cost
Hello! I just was recommended Tymlos from my Endo. Can anyone tell me how much or if it is covered by insurance? I have Blue Cross Blue Shield Federal. TIA.
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@oopsiedaisy
You have been through so much frustration with docs and insurance! I pray you will find a good fit doc-wise and have smooth sailing from here on out!
@oopsiedaisy
Like you, Cigna said no to Tymlos for me (I had been on it for five months), but yes to generic Forteo. I will receive my first pen later this week. How has your experience on it been?
I wish I had good news but I stopped taking the generic Forteo last week because I developed severe joint pain. It was so bad I was no longer able to exercise; even walking hurt. This is very unusual for me as I've been exercising 5-7 days a week since 2012.
I've been off now for about 5 days and the joint pain has almost gone. I still have a bit in my left knee.
I've read that this is a common side effect in approximately 10% of patients.
Will be visiting my doctor to discuss soon.
The Tymlos didn't cause this issue at all but I did have some other milder side effects. I'm getting weary of all the changes to medications and dealing with insurance companies and specialty pharmacies.
I may take a break until my next DEXA and see where I'm at. Now that I've been off the Fosamax for a year hopefully I will get back to building some bone.
I hope the Forteo works for you and thank you for asking!
I am sorry that I missed this earlier. Thank you so much for your kind thoughts.
@oopsiedaisy
Oh no! I am so sorry the Forteo didn’t work for you. I understand your frustration with insurance, changes, etc. The whole thing just blows my mind. I had no idea all this kind of stuff was taking place. It’s hard to believe that our health decisions can be so influenced by insurance companies rather than doctors!
Looking for advice on how to pay for Tymlos. I’ve been on it for over a year. My insurance considers this a specialty drug and they will pay only 50%. The cost of the drug is $2700 a month. I had a coupon from the Tymlos website (Radius) that contributed $7500 per calendar year. That covered a good part of last year but it is now used up for this year so I’m looking to have to pay over $1300 out of pocket every month, going forward. Radius Health as an option for low income people (which I am), but it will only help those who have no insurance at all. Any suggestions or thoughts would be most welcome. I cannot cover $1300 a month and do not want to switch to another medication because honestly, I’m scared to death of all the “next step options”, and, I’m still benefiting from Tymlos. Thanks everyone🙏🏻
There is a savings card (not Radius Assist) on the Tymlos Web site for people not in Medicare who are under other insurance, but I have no idea if it will work for you.
https://tymlos.com/access-and-savings/