Hi @mjbulte, Reading your reply had me thinking of an act on the old Ed Sullivan show…where this man would have plates spinning on top of wooden dowels…always running back and forth, trying to keep them all aloft at the same time. That’s what I feel you’re going through with everything that’s going on in your life right now!
There’s a lot up in the air with waiting for a diagnosis, appointments for labs, vacation plans… But like the act, each plate was under control and taken down at the appropriate time. Same for you…one day at a time and this will get sorted out!
Not sure what to tell you about the family/friends reunion vacation. It would be a shame to miss that after all the planning. You could ask your doctor if they see any problem with you making this trip. They would know more about your situation and whether or not it would be ill advised. As long as you’re doing ok on the hydroxy, you feel up to it and you take precautions to avoid illness, the vacation might be a welcome distraction for you.
Because the hydroxy can interfere with your immune system you may be more prone to illness. But it doesn’t mean you have to stop enjoying life. Just mask up if you’re flying (plane/airport) and in groups of people if you’re indoors with family and friends.
I’m here for you if you have any questions/concerns, need a shoulder or an ear. ☺️ Please me know what you find out on your labs? I’m nosey that way.
Thank you Lori. Echocardiogram is Monday next week. Will be scheduling bone marrow bx tomorrow. Hoping to get that done ASAP or never, depending on my emotions at any given moment.