← Return to Looking Back - What Were Your Early Warning Signs of Parkinson's?

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I am thankful for your comments. My spouse had lower back surgery . He had a cyst pushing on the nerve. They found a foreign body . Sent both for confirmation of any Cancer, etc. He has melanoma insitu. He sees the dermatologist for evaluation. I requested the appt. and was able to get a referral.
By the way his back was degenerated disc's and herniated . We knew he had a herniation as I took to a Neurosurgeon. He did get several injections through the last few year's. He was in agony. I begged forever since 2018 for a referral to a Movement Disorder Neurologist. ..Our Neuro said it was not necessary! He retired last year and we were so surprised when our new Neurologist asked us if he had ever been to one. She explained that this is not unusual for older physicians. He did the usual Neurologist stuff and gave him Carbo-dopa Levadopa. I approached several times to no avail. He said get him into boxing ! No.. I did some research and found out our local YMCA had a Parkinsons Program and PT on staff. We went 3x a week. He did great.. Of course Covid stopped that. We had to get a revaluation and he went back. There was no PT on staff. Imagine that. But I knew his program as I worked out with him. Imagine that I didn't need help from a physician. I am so proud of how he has done since 2013. He is stubborn sometimes and I try to reflect the outcomes to him if he does nothing. Kudos to you for sharing and being a good Nurse.🫂

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Replies to "I am thankful for your comments. My spouse had lower back surgery . He had a..."

I can tell you are a think outside the box person. I love that! You and I are twinning. It seems like we are in the same boat. I seem to have lost my oar! Lol
Went for MRI today, and he has to go to another location tomorrow because the MRI machine was too narrow for him. The poor man looked like a stuffed sausage. Over the past 2.5 years, he has gone through 25 major surgeries, including a staph infection that landed him at home for 7 weeks on a pik line. There hasn't been a shift change for me since, but I am still going strong. Perhaps it is my Type A personality or git r done attitude. Perhaps I am plum crazy or it is just internal strength. Personally, I don't know why I haven't broken yet. I know that I am not alone in this matter, and I can't give up. It just isn't in me to give up. I pray for answers and resolutions at this point. I encourage others to fight the fight because it is worth it. I consider myself mildly religious, and despite the hard times, I feel blessed. My thoughts and prayers go out to you and your husband. Enjoy your lives and know that you've got this! 😉