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Hello! My sister ,age 74 has recently been diagnosed with CML
Blood Cancers & Disorders | Last Active: Jul 10 1:06pm | Replies (16)Comment receiving replies
Lori, thank you so much. You have no idea how much your response means to me. I hope someday I can do the same for someone else. Until then, oof, this is a LOT. We’re waiting on insurance approval of the bone marrow biopsy so it can be scheduled. I’m scheduling my echocardiogram today. A lit of blood was drawn last Thursday and waiting on those results. Another draw on July 18 to be done.
We’re scheduled to travel 2,000 miles away to visit family and friends for 10 days in just less than 2 weeks. I just can’t decide if we should try to go or not. Maybe reschedule for a later date. But at a later date will I not be able to travel? Gosh, it’s got my head swimming.
I feel better some of the time on the Hydroxyurea and sometimes a bit sluggish, flushed, queasy but nothing majors, then that goes away and I feel better again. I just found out my last CBC was 8/17/24 and it was normal except WBC were 14.2 and platelets were high end of normal. Of course my 6/26/25 CBC was horribly bad with WBC 21.4,
platelets over 1,000 plus other dismal readings. At least my hemoglobin was normal!
I must be brave but my armour is cracking 🥴
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Hi @mjbulte, Reading your reply had me thinking of an act on the old Ed Sullivan show…where this man would have plates spinning on top of wooden dowels…always running back and forth, trying to keep them all aloft at the same time. That’s what I feel you’re going through with everything that’s going on in your life right now!
There’s a lot up in the air with waiting for a diagnosis, appointments for labs, vacation plans… But like the act, each plate was under control and taken down at the appropriate time. Same for you…one day at a time and this will get sorted out!
Not sure what to tell you about the family/friends reunion vacation. It would be a shame to miss that after all the planning. You could ask your doctor if they see any problem with you making this trip. They would know more about your situation and whether or not it would be ill advised. As long as you’re doing ok on the hydroxy, you feel up to it and you take precautions to avoid illness, the vacation might be a welcome distraction for you.
Because the hydroxy can interfere with your immune system you may be more prone to illness. But it doesn’t mean you have to stop enjoying life. Just mask up if you’re flying (plane/airport) and in groups of people if you’re indoors with family and friends.
I’m here for you if you have any questions/concerns, need a shoulder or an ear. ☺️ Please me know what you find out on your labs? I’m nosey that way.