Anyone have chronic diarrhea while on digestive enzymes?

I've been taking Zenpep for a few years. It costs thousands of dollars per month. And yet, all it is, is a tiny amount of pig pancreas.

The recommended dose for a small weight adult (117-179 lb) is 40,000 per meal. The recommended dose for a larger adult is 60,000 per meal.

I'm indignant. I've been limping along all this time on 25,000 per meal. Craving fats but if I eat very much of them I end up with fatty diarrhea. I called for guidance and they refused to give me any. My doctors know nothing. Not even the gastroenterologists.

I finally got a diagnosis from genetic testing at sequencing.com. $400 for your whole genome and comparison to a database of genetic disorders. You will find all your family illnesses listed there but of course, most of them won't strike you. But my dad's leukemia, the family colon cancer, the Hirschsprung's some have, minor vitamin deficiencies, and other diseases we haven't seen were all listed as highest probabilities. There were more than 40,000 lowest probabilities (which is why doctors without genetic guidance have a real problem with getting a diagnosis of the "Zebra" diseases).

Hereditary autoimmune pancreatitis.

My grandfather thought he had contracted the problem from eating contaminated beef during World War II. There are two others with the same symptoms in the extended family.

Autoimmune pancreaticitis attacks can be ended with prednisone.
That's important because the pancreatitis progressively damages the pancreas.
Same symptoms as pancreatic cancer, but it doesn't kill you early. The only unaided way to stop the pancreatitis is to exhaust your white blood cells . Which you do by not eating or drinking (except some water) for 72+ hours)

I can't get to Mayo because I can't drive up there. Not until I get cataract surgery. I'm 72.

I have a problem with both fats and proteins. Proteins cause the most pain. When I ran out of Zenpep last month, I used health food enzymes and went on a vegetarian diet. I was surprised that I could eat the higher-fat, low-protein diet. In my lifetime I've become progressively intolerent or allergic to seafood, dairy, wheat, hard boiled eggs, and unaccompanied eggs, And just recently I've been having troubles with all meats. Something seems to go right through the kidneys. Ot it could be an "allergy" that's showing up as kidney passthrough/bladder irritation. Very smelly.

Anyway, I opened up one of the Zenpep capsules to split the dose and saw how little was in there, and got online.

What is Zenpep like I just had a blood test and my liver is high and my doctor think it’s from the Creon I see the specialist in 2weeks Also my iron level is Realy high which is surprising as I don’t make iron and have an iron infusion every year My diarrhoea is still chronic have lost 9kgs in the last two months I watch what I eat as I am Diabities 2 controlled by diet but it has been in the 4lately which is unusual for me Have to wear nappies all day and night and my bladder gets urgent to

I've been taking Zenpep for a few years. It costs thousands of dollars per month. And yet, all it is, is a tiny amount of pig pancreas.

The recommended dose for a small weight adult (117-179 lb) is 40,000 per meal. The recommended dose for a larger adult is 60,000 per meal.

I'm indignant. I've been limping along all this time on 25,000 per meal. Craving fats but if I eat very much of them I end up with fatty diarrhea. I called for guidance and they refused to give me any. My doctors know nothing. Not even the gastroenterologists.

I finally got a diagnosis from genetic testing at sequencing.com. $400 for your whole genome and comparison to a database of genetic disorders. You will find all your family illnesses listed there but of course, most of them won't strike you. But my dad's leukemia, the family colon cancer, the Hirschsprung's some have, minor vitamin deficiencies, and other diseases we haven't seen were all listed as highest probabilities. There were more than 40,000 lowest probabilities (which is why doctors without genetic guidance have a real problem with getting a diagnosis of the "Zebra" diseases).

Hereditary autoimmune pancreatitis.

My grandfather thought he had contracted the problem from eating contaminated beef during World War II. There are two others with the same symptoms in the extended family.

Autoimmune pancreaticitis attacks can be ended with prednisone.
That's important because the pancreatitis progressively damages the pancreas.
Same symptoms as pancreatic cancer, but it doesn't kill you early. The only unaided way to stop the pancreatitis is to exhaust your white blood cells . Which you do by not eating or drinking (except some water) for 72+ hours)

I can't get to Mayo because I can't drive up there. Not until I get cataract surgery. I'm 72.

I have a problem with both fats and proteins. Proteins cause the most pain. When I ran out of Zenpep last month, I used health food enzymes and went on a vegetarian diet. I was surprised that I could eat the higher-fat, low-protein diet. In my lifetime I've become progressively intolerent or allergic to seafood, dairy, wheat, hard boiled eggs, and unaccompanied eggs, And just recently I've been having troubles with all meats. Something seems to go right through the kidneys. Ot it could be an "allergy" that's showing up as kidney passthrough/bladder irritation. Very smelly.

Anyway, I opened up one of the Zenpep capsules to split the dose and saw how little was in there, and got online.

I live in South Africa and have been on Creon 25000 and Creon 10000 since 2014. Unfortunatly my Medical Scheme don't cover Creon because of 2 reasons. 1. They see it as a suplement and 2. It's expensive. With the cost of living going through the roof here, I can't afford it anymore and trying to get it from Gevornment Clinics is downright impossible. When I ask the Pharmacist for cheaper alternatives, I'm told there is none. I might as well sleep in the toilet. I'm doomed.

Just the opposite. Constipation. I have stopped taking the Creon.