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HCM getting worse?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 11 hours ago | Replies (17)

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I'm 71 and have had symptoms for 20-30 years, gradually worsening. I avoided being honest because I didn't want there to be anything actually wrong as I am fearful of medical interventions and dislike taking medications. Based on a worsening heart murmur, I had an ECHO that showed severe mitral valve regurgitation and other signs of HCOM...I was completely shocked & really fearful at that point. However, I've been on Camzyos since 8/2024 with great results. Heart murmur is barely audible and I rarely have any symptoms. My fears turned out to be groundless and I am so grateful that I now understand why I've felt the way I did. I can only repeat what others emphasize and that is to make sure that you see a cardiologist that is a HCOM specialist.

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Replies to "I'm 71 and have had symptoms for 20-30 years, gradually worsening. I avoided being honest because..."

Interesting. I was diagnosed with HCM 6 years ago just before I turned 65. I've never heard of Camzyos, don't remember either cardiologist I saw mentioning it either. My symptoms were getting worse so surgery was recommended for me. I underwent open heart surgery in 2023 ( I just turned 71) and it made a huge difference. Is Camzyos a new drug? I'm in Canada, maybe it's not available here.🤔

What an encouragement. I may be started on Mavacamten (Camzyos) soon.
Your success story is wonderful.