← Return to New to exocrine pancreatic insufficiency (EPI): What helps?

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Profile picture for dianehrdr @dianehrdr

thank you very much for your input. I will look into Colestid. I too, lost a lot of weight, was malnourished, particularly in the beginning but repeatedly during bouts of SIBO or loss of appetite/diarrhea.
Gosh, it is really is interesting because I started being symptomatic after Covid in 2020 and not one doc has acknowledged that this may be the cause. I feel I have been viewed as an alcoholic or whatever they have perceived ahead of time, so this is refreshing to know in your case.
I am wondering if this is becoming a more frequent diagnosis since Covid hit the scene.
Also, may prompt more research.
My big question...is it worth my travel/flight/hotel/cost/fatique to travel to the Mayo Clinic or is this really a condition of strict management, mostly on our own?

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Replies to "thank you very much for your input. I will look into Colestid. I too, lost a..."

I have recently been diagnosed with pancreatic insufficiency. I am taking Creon with meals. I also have long covid and did not have the pancreatic problems until after I was diagnosed with long covid.

Your input is very interesting to me. I have been diagnosed with EPI, previously SIBO, Ileocecal valve issues and IBS after Hiatal Hernia surgery.
I have been the thinking of going to Mayo Clinic as well, and wonder if these are all "live with it" issues. I have been on Creon, now on Zenpep, still having diarrhea issues, for over 2 years. Suggestions , anyone? Thank you.