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Blood Cancers & Disorders | Last Active: May 27 8:45am | Replies (122)
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Replies to "So happy to know theres someone else with breathing issues too! I was starting to think..."
My allergy pulmonologist is at a large university setting. There is a data base of physicians that treat Mass cell disorders at http://www.tmsforacure.org. It’s the website called The Mastocytosis Society. If you can’t find a specialist in your area, maybe you can call one of the physicians closest to you and they can refer you to a someone in your area. Every doctor has different training experiences, just like I am a physical therapist and I know how to treat certain diagnoses that another PT may not simply because my internships were different than theirs and I may have come across a patient with an uncommon problem, but my experience taught me how to treat them. Please keep looking for a doctor that can help you. I know it’s frustrating. It took me 6 years to get a maybe diagnosis. I was an addicted runner who ran 6 days a week, 9-10 miles. Having that taken away from me sent me into a major depression. Don’t give up even though this is the suckiest (yes, that’s professional jargon 🙂 ) disease.