Clobetasol every other evening

Clobetasol twice a week, Estragyn cream twice a week (on different days), and vaseline, or aquaphor, or emu oil multiple times a day (ie after shower or going to the toilet). Vaseline and aquaphor serve as barriers and so keep the area dry from my occasional urine leakage and the emu oil supposedly penetrates deep into the dermis to keep the vulva area well hydrated. The estragyn cream is placed internally, but the doctor suggested smearing a bit on the vulva too.

My journey began with the fact it took 10 years to be diagnosed which means I have quite a bit of scar tissue. My dermatologist made the diagnosis. Needless to say I changed my gynecologist. I currently see both my dermatologist and my gynecologist yearly. I've had this condition for about 26 years. I had to spots biopsied for cancer and thankfully they were negative.

I use Aquaphor 1 % anti-itch cream in the vaginal/vulva area once or twice daily. I also use regular Aquaphor in the anal area at least once daily. I am very comfortable now. Note I also use Estrace cream on the vaginal opening once or twice a week.

Other recommendations: use Dreft laundry soap for babies or similar, don't use dryer sheets (I use dryer balls), use mild soap such as Dove or Norwex wash rags that don't require soap, pat - don't wipe, use Charmin toilet paper with Aloe Vera or similar, limit any bike riding or at least "grease" up when you do and use padding.

I also have found that Jockey Worry Free underwear is really nice. It is slightly padded but mostly is important as with all the lotions I don't have to worry about anything showing through my clothes.

Everyone is so different but I hope some of these ideas might help you out and give you hope!

No, just my regular one.

@aratner Welcome to Mayo Clinic Connect! I think you can see that members are very helpful.

Clobetasol three times a week and vaseline as needed between dosing days. Clean when needed after toileting with Water Wipes (Amazon). Shower with Vanicream for sensitive skin, but only use water on treated regions. Wear cotton underwear, white fabric in the crotch, wash in lingerie bags with Arm and Hammer free and clear sensitive skin detergent, extra rinse. Dry in bags too. No wool balls in dryer. Do not wear underwear to bed. For intimate use, individual packets of coconut oil is the most lubricating.