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Hello Everyone,
I am new here looking for a supportive community who understands Mast Cell disorders. I am 34 years old and my vague symptoms started 3 years ago with feeling heat intolerant (always hot/overheating), low grade fever, and weight gain. I thought it was related to hormones because I don't have my period anymore and I have PCOS. Well after my aunts breast cancer spread to her brain in October, i was severely stressed out and my heat intolerance turned into sever flushing in my face and entire body that I thought was an allergy to a food. I went to see an allergist and he tested me for 24hr urine Histamines and that came out positive 8x the normal upper limit. Next he is testing for tryptase and a few other labs. I am in shock that this is happening to me and I need some support and survivor strength. Has anyone thought that their symptoms get worse with stress or depression? Has anyone switched their diet to vegan? Thanks, everyone!
Replies to "Hello Everyone, I am new here looking for a supportive community who understands Mast Cell disorders...."
Yes! My doctor told me that symptoms of MCAS do get worst with stress.... being negative or positive stress, the body does not discriminate good or bad. Stress is stress. He told me try and control my emotions, stress levels by any means including my anxieties as it escalate my attacks. Meditation, mindfulness and weekly counselling. I struggle everyday with this! I can even be overly excited since it can trigger an allergy cascade. My emotions have to be as bland as my food. Also, I only eat white fish and white meat on a paleo diet, gluten free and preservative free including soy. This seems to help me have somewhat of a functional life.
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@lookingforanswers2017 I know nothing about this condition but I just want to say you have come to an amazing community of helpful people. I am sure there are people who do know something about this and can understand and perhaps suggest things.
I hope for the best for you in that endeavor and that you will find some real help with this condition.
JK