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MGUS & Thrombocytopenia

Blood Cancers & Disorders | Last Active: Jul 9 12:01pm | Replies (6)

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I haven’t been able to get on here lately I’ve been really sick. Yea they said I have diverticulitis too and I’m losing my muscle mass I’ve noticed too. I wake up feeling like poop. I have no desire to eat but I make myself eat. Yes they said I needed to be on psychiatric medication too. It’s insane it’s almost like most drs just ping pong 🏓 you around from one dr to another too. I feel like if you have a blood pressure and a pulse they think you’re fine and I’m a Christian so I pray constantly for answers or healing and it seems no one understands and lately I have withdrawn from folks and been depressed but it’s because of my health issues the upper tummy is swollen on my upper left side and sometimes I’m literally balled up in bed 3 days crying in extreme pain it’s like attacks of some kind. 🤷🏻‍♀️ I’m so sorry you are going through a lot of the same symptoms and issues I pray God will work through the drs to heal us and give us answers and give us drs that truly care in Jesus name Amen 🙏🏻

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Replies to "I haven’t been able to get on here lately I’ve been really sick. Yea they said..."

@gingerbarnes hi Ginger, I apologize if I missed this piece of information earlier. I’ve had health issues myself to deal with. The swollen tummy issue on your left side… what did your hematologist/oncologist say about that?
It’s frustrating to feel as though you’re not being heard by your doctors. Hugs.