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The Caregivers' Guilt Dumpster - Open for business

Caregivers | Last Active: 5 hours ago | Replies (129)

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Oh but can he still do some things? Wow! he can do some things still. I am not being sarcastic but my husband can barely walk with parkinsons and mcd and i have to do everything for him. There is no question that currently he can basically feed himself and everything else is up to me. He gave up reading a few years ago and i thouht he was maybe lazy but i had his eyes checked and with readers he can somewhat read. Problem is the mild cognitive decline and maybe parkinsons. I figured he had glaucoma or macula so i took him for second opinion and nothing was mentioned by eye dr other than wearing readers. Still havent figured out why reading is so difficult for him. Be greatful if he can still do somethings. I have to bathe, toilet, walk,and hand my husband everything because when you cant walk or stand it affects everything from dressing to helping shave, brush teeth and even help him use remote to tv. Sorry to complain but i am living the life of two adults now. He has indwelling catheter and i am having to carry the urinary bag around because he forgets it or doesnt remember how to hang it on his belt loop when walking. My shoulders ache all the time and i am mentally and physically exhausted. It is a hard journey and i love my husband. Never dreamed me and my husband would be going through this. His mild cognitive decline sootheds his anxiety and he cant relaye to my high stress. He is calm as cucumber and i feel all the frustration of this NEW NORM.

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Replies to "Oh but can he still do some things? Wow! he can do some things still. I..."

My heart goes out to you, I’ve experience some of the same things with my husband. It becomes overwhelming. My prayers are with you.