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Typical Carcinoid Tumor in Lungs

Neuroendocrine Tumors (NETs) | Last Active: Jan 31, 2023 | Replies (31)

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@hopeful33250

@dzerfas Hello and welcome to Mayo Connect. We would enjoy getting to know you better. If you would like to share something about your carcinoid, we would be interested in hearing what led to your diagnosis. Were you having specific symptoms that led to the CT scan in December? I've also had carcinoid tumors, but in the digestive tract. We actually have a group dedicated to those of us who deal with carcinoids. I'm not familiar with the term "Typical Carcinoid." I'd like to introduce you to @joanney, who has also had a carcinoid in the lung and had surgery several years ago. Perhaps she can shed some light on your situation. Here is a Mayo website that you might find interesting: https://connect.mayoclinic.org/discussion/has-anyone-used-mayo-clinic-in-rochester-minnesota-for-carcinoid-tumors-the/. In the meantime, we look forward to getting to know you and walking with you on health journey.

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Replies to "@dzerfas Hello and welcome to Mayo Connect. We would enjoy getting to know you better. If..."

Hey Teresa, it looks like we were writing at the same time 🙂 Here's some information about Lung Carcinoid Tumors from the American Cancer Society that I found useful to understand the difference. http://bit.ly/1MwcPgG

My sister and I both ended up with this in our lung. We, both, found out when doing a check for heart disease. Neither one of us have heart disease. Really weird to both have a carcinoid tumor.