Hormone Therapy

I truly thank everyone for your comments, it is so easy to overthink everything when getting ready to start treatment. I am doing daily exercises and working on my overthinking. My Decipher Score has not came back yet and I get my PET Scan next week. I have decided to trust my Dr and go ahead with the hormone and radiation treatment after all he did tell me that his goal was to cure this and I know that may or may not be possible. I think my biggest concern was quality of life and being 77 I didn’t want to make a decision that was going to make life suck from here on out. I try to stay on good websites like Mayo clinic which is helping.

Spot on and degrees of depression

I didn’t comment on your driving question, Others have.

I drove to radiation for seven weeks and so did everybody else that was in the room getting radiation while I was there. Some people had a little fatigue after and rested in their cars, but most just drove off.

Never had an issue, sure doesn’t affect driving, you should be just fine.

Regarding degrees of depression —>

We often hear about the physical benefits of resistance-training exercise to minimize the side-effects of hormone therapy (https://m.youtube.com/watch?v=YE61HSAsFb0).

But, there are also mental health benefits of exercise: https://m.youtube.com/watch?v=8n0cIhamFvo

Seven months on Orgovyx, each month tougher than the previous. Daily changes of clothing from sweats, pulling to the side of the road as needed. PSA down 95% to less than 1. Pain, fatigue has reordered our lives -- I'm the sole driver. But keeping eyes on the prize -- beating down C, hoping for rebound.

I had severe hot flashes for the first year on Lupron. As a hot flash was hitting I would feel a lot of fatigue. After a year, my oncologist prescribed a depo-provera shot every three months and it really stopped those hot flashes on Lupron. There are other hormones that can do this, speak to your doctor.

I know one person that says eating tofu every day really controlled his hot flashes, another person in this forum said the same thing. Can’t hurt to try it. Black Cohash is also said to help, especially for night sweats. Acupuncture works for some people.

I have an embrlabs.com wave product (wave 2). I’ve used it for Over three years now. It’s like a refrigerator that looks like a watch and sits on the inside of your wrist. You could set up one of the buttons for their night mode . Hit the button twice and It Produces cold waves at measured times during the night and prevents hot flashes and night sweats. They used to bug me, before I got this device . When you start to feel a hot flash coming on, you hit another one of the buttons twice and it sends cold chills through your arms and it reduces the intensity, shortens the life and can stop the hot flashes if hit quickly enough.
https://embrlabs.com/
If you get one, you should post a question in here about configuring it. I have instructions for exactly how to configure it so you’ll get the optimal use. They have a 30 day free trial.

59, 13 months triple therapy. Exactly as @jeffmarc describes for me. My mother had vascular dementia and this is very different. I struggle for words but know exactly what I am expressing and work through it. Never have had an issue driving or other activities. Best of luck on your treatment.

I’m going to be doing the 5 fraction SBRT salvage radiation soon. How did it go for you? My RO wants me to on ADT for two years, I’d rather do 6 months.

Do you want to have a long life? It’s recommended for two years because your cancer is aggressive. If you don’t stick to those two years, you can almost guarantee you’re going to have a reoccurrence.

Cancer can be really painful if you let it grow. Staying on ADT is not going to kill you but stopping It may Shorten your life a lot. I’ve been on ADT for eight years, I don’t like it, but it keeps me alive.

I attend Weekly advanced prostate cancer meetings at Ancan.org. They’ve been giving advice to people who have prostate cancer for 15 years. One thing they have found is that people who do what you are saying you want to do are the ones that live the shortest lives, And have their cancer come back and be aggressive. People come in frequently asking to shorten the amount of time they are on ADT, It’s seldom advisable, Their years of experience helping people have confirmed that fact.

You’ve already had one reoccurrence, Do you really want a second, sooner than it has to be.

My SBRT went well. I was worried if I was well prepared for my second treatment; I asked after treatment if there was a problem, I was told that everything went well. On the third session, I was asked if I experience "burning urination." No. However, after I completed all 5 treatments, I noticed some mucus and traces of blood in my stool. I reported to my oncologist but apparently, it wasn't a cause for concern; it cleared after a few days. Regarding ADT, I'm now on 4th month in Orgovyx. My first PSA test will be on July 8, then November. My oncologist will advise if I can be off Orgovyx after 8 or 12 months. I was Gleason 7 (3+4) on three cores out of 14 samples, (0+2) on four, (0,0) on seven, intermediate risk, early stage 2. What was your Gleason score and Stage? Offhand, Jeff indicated yours may be aggressive, reason for recommending two years ADT. I will yield to my oncologist's recommendation, whether 8 or 12 months for me.