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Liver transplant - Let's support each other

Transplants | Last Active: Aug 8 10:40am | Replies (1688)

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@rachel5239, My wife is 6 months post liver transplant. Our team gave her an option to have a liver transplant as she had NET, and the only remaining area with NET was her liver. The team felt it was her best chance to give her the best result over time. She had the transplant in January 2025, and has had 4 follow-up surgeries to fix items. Then had fluid around the lungs for about 5 months which was drained repeatedly. Now she is still dealing with a breathing issue from the start actually, that our team just says it takes time to heal and resolve. She can only walk about 30 yards or so, and has to sit down. She spends most of her day in a chair worried about losing her breath. What if any advice/experience do you have regarding the breathing issue, if so how long did it last, and what did you do to improve it? All her blood tests are good, there doesn't appear to be major issues with the function of the new liver.

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Replies to "@rachel5239, My wife is 6 months post liver transplant. Our team gave her an option to..."

I have never had any breathing issues. I do know it takes time to get everything working properly. A transplant is a very big surgery and it takes a toll on your body and 6 months isn’t a very long time. If her tests are good hopefully the rest of it will get better. It was at least a year for me to really start feeling like my old self. It all takes time. A transplant is a very big surgery and it takes a long time to heal and to get the right drugs that will work for her. Prayers that everything turns around for her.

I did not have any of those problems. It takes about a year for things to get back to somewhat normal. Also it takes time to get set up with the proper meds for you. Blessings on your transplant journey.