@rachel5239, My wife is 6 months post liver transplant. Our team gave her an option to have a liver transplant as she had NET, and the only remaining area with NET was her liver. The team felt it was her best chance to give her the best result over time. She had the transplant in January 2025, and has had 4 follow-up surgeries to fix items. Then had fluid around the lungs for about 5 months which was drained repeatedly. Now she is still dealing with a breathing issue from the start actually, that our team just says it takes time to heal and resolve. She can only walk about 30 yards or so, and has to sit down. She spends most of her day in a chair worried about losing her breath. What if any advice/experience do you have regarding the breathing issue, if so how long did it last, and what did you do to improve it? All her blood tests are good, there doesn't appear to be major issues with the function of the new liver.

My husband had a liver transplant at the end of April at the Mayo Clinic in Jacksonville. Thanks to God and the Excellent Team, his surgery went well. He is an optimistic and positive person; also he also walks every day like two times in the treadmill but he is tired, sleeps a lot and I have noticed that he is short of breath and his hands are shaking. We know that the Tacrolimus and Mycophenolate cause several secondary effects but I’m still worry about his health. The liver enzymes are normal. Thank you for sharing your experiences !!!

Please share your experience. I’m trying to learn as much as I can.
Thank you