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What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: Sep 4 8:39pm | Replies (97)

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Profile picture for davi0937 @davi0937

Morning - one more question! From the appointment when your provider said you were fit for BMT - how long till you went in? I’m still working and trying to sort out timing. I know it will be different for me but curious. Thank you again!

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Replies to "Morning - one more question! From the appointment when your provider said you were fit for..."

Timing on a BMT for some patients can be more critical than others. If you’re receiving one, basically preemptively, planning might be done with your schedule in mind. In my case, as is often, there was more of an urgency to get this completed before a relapse. (I had reached a temporary remission with a high risk for relapse)
Timeline in a nutshell:
February 6, diagnosed with AML. (Several rounds of chemo between diagnosis and BMT)
Mid April, first consult with BMT doctor (confirmed as candidate)
Mid May. 2nd consult with BMT doctor- matched with donor
Mid June, testing followed by transplant June 28.

For planning purposes…expect to be in Rochester at least 100 days (maybe less if let out for good behavior. LOL).

Returning home, you’ll still be tired though you should be slowly regaining strength and stamina. Usually by 3 months you’re feeling appreciably better but still not 100% energy. That may take a while. Most people are feeling pretty fit by 6 months…again, that’s not a guarantee. There are ups and downs.
I’m 6 years out, most days feel like I’m in my 20s (I’m 71) but then if I act like I’m in my 20s, I’ll have 2 or more days of feeling like a slug. 😁. So, it’s all about pacing ourselves.
My advice to you is to try and be as healthy as possible before having the transplant. Walk daily, even during the journey! Exercise, eat healthy foods, focus on positive affirmations and always have something to look forward too. This all helps to get through a few months of challenging times. It’s well worth the effort!