← Return to afraid that I may have Hypertrophic cardiomyopathy

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Profile picture for brumasterj @brumasterj

Sounds like you are super healthy and have done so many things and been to lots of places in your life! 🙂 thats so awesome! Unless i have missed something your not slowing down too much at all and are still very active! Good for you! The only advise i would give you and its jot much, but if your not being effected physically by what some doctor told you about your heart thats great! Keep doing what your doing and when you do feel like your heath or your workouts are suffering reach out to a COE on HCM! If its eating at you psychologically reach out to a Center that specializes in HCM
People with HCM or obstructive HCM can lead very normal active lives i did for years! It wasnt till i was 48 till i started gradually being effected by it and then went another 9 yrs being misdiagnosed! It was frustrating because i was a very active runner and mountain biker, my runs and bike rides started suffering more and more each year!
I was happy to finally been diagnosed withHCM and severe LVOTO! At least i knew i wasnt crazy and there was a fix:)
Best of luck with everything and i hope you get your answers your looking for

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Replies to "Sounds like you are super healthy and have done so many things and been to lots..."

If you don't mind sharing, what diagnosis did they think you had before you were finally diagnosed with HCM? Did the symptoms gradually appear or it just happened?
Are you still able to run and mountain bike?
What is severe LVOTO? what does this stand for?