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What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: Sep 4 8:39pm | Replies (97)
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Profile picture for davi0937 @davi0937

Thank uou @loribmt! Great information. I will keep you in the loop as I hopefully get ‘Mayo-based’. Were you in the hospital after the marrow transplant for weeks? Thank you again for a n example of the schedule and information. Well informed is well armed!

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Replies to "Thank uou @loribmt! Great information. I will keep you in the loop as I hopefully get..."
Lori, Volunteer Mentor | @loribmt | Jul 5 8:18pm

Hi @davi0937, The BMT experience at Mayo-Rochester is outpatient. There are just a couple of days in Methodist Hospital during the pre-conditioning and day Zero (transplant day). After the transplant you’re expected to recover in lodging near the clinic for 100 days or so. Lots of hotels, apartments nearby as well places such as Gift of Life transplant House or Hope Lodge.

Patients return to the clinic daily for follow-ups, labs or infusions. You’ll be given a card with numbers to call if there is EVER an issue or concern. You can call the number 24/7, it’s answered immediately by the BMT team and if needed you will be admitted to the hospital quickly.
I have more information on those details when you need them.

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