Hello
I was finally diagnosed with APLASTIC Anemia by Moffitt cancer ctr in Tampa, in January 2022.
Moffitt has a team of Dr's dedicated to Aplastic anemia treatment.
I got the ATGAM treatment as an in patient on February 1st thru 5th and was sent home the 6th to see if the treatment was going to work. They said I had a 75% chance of the treatment working.
I began responding within two weeks and by the end of February I started regaining my blood cell Numbers and my Platelets began to increase.
I was put on Cyclosporine, Promacta, prednisone, and a few other drugs to control any infections.
I gradually got to almost normal blood cell Numbers with Platelets at 275K. Up from 7k in January 2022.
I have gradually fallen down in Platelets since you cannot stay on Promacta for a long period or it will do more damage to your bone marrow.
My Platelet count is stable around 110k.
I continue taking Cyclosporine in low dose so as not to damage my kidneys or liver.
Note that prior to going to Moffitt I was in Palative care, living on blood and Platelet transfusions weekly and weekly shots to increase my red and white blood cells.
I became my own advocate for survival and stayed in the fight and searched for the right Dr's and in my case, Moffitt was and is my recommendation for treatment of Aplastic Anemia.
They are very caring and check in with me every month. I have blood tests every month and send them to my Dr's at Moffitt for review.
I'm 77 now and feeling great, hoping my bone marrow holds out a bit longer.
Have a great day.
Rocky