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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)Comment receiving replies
Hi @rckj, I can imagine that you're anxious and scared about this new challenge. Thanks goodness you have an excellent team.
You might wish to talk with others in the Eye Conditions group: https://connect.mayoclinic.org/group/eye-conditions/
In particular, I think you might appreciate this discussion:
- Low Vision: Let's share about coping day to day https://connect.mayoclinic.org/discussion/low-vision-1/
There are few corneal dystrophy related discussions too.
Replies to "Hi @rckj, I can imagine that you're anxious and scared about this new challenge. Thanks goodness..."
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@colleenyoung thank you for the links to vision related issues! As I suspected, my corneas have begun to destabilize. No surgery yet, just watchful waiting and supportive treatment. Various drops and ointments and bandage lenses. As usual, I always get the warning that this could, at some point, progress to transplant. It all just feels like too much. I will connect to the low vision and the dystrophy groups on the vision site. These support sites have been of such help to me. Thank you again. Rhoda