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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)

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@rckj

@rosemarya and @colleenyoung hi Rosemary and Colleen. A bit scared right now. I have a congenital corneal problem called corneal dystrophy. I’ve had multiple laser surgeries as my corneas won’t heal on their own and can spontaneously tear and need repair. They have been ok for a while but today are showing signs of deterioration. Off to the corneal specialist. But I haven’t been on Coumadin for this problem before. Will tell ophthalmic surgeon today. Surgery wouldn’t be right away any way. But very anxious. Getting advice from the Coumadin/Warfarin team. Not much else to do except wait and see what they say. I seem to defy the unwritten rule of only one genetic disease at a time! This practice is really great and have saved my vision numerous times. Just really anxious. Hoping for the best for me and all of us.

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Replies to "@rosemarya and @colleenyoung hi Rosemary and Colleen. A bit scared right now. I have a congenital..."

@rckj, I send prayers for you. And especially for your medical team.
Hugs.

Hi @rckj, I can imagine that you're anxious and scared about this new challenge. Thanks goodness you have an excellent team.

You might wish to talk with others in the Eye Conditions group: https://connect.mayoclinic.org/group/eye-conditions/
In particular, I think you might appreciate this discussion:
- Low Vision: Let's share about coping day to day https://connect.mayoclinic.org/discussion/low-vision-1/

There are few corneal dystrophy related discussions too.