Glioblastoma stage 4 -my story so far

You can reach 85 years or more!! 🙏 need lots PPF (PATIENCE PRESEVERANCE and FAITH).. You may want to read the book of a stage IV glioblastoma patient, who survived more than 20 years : "They call me a miracle" by Randy R. Harris with Carmen Rice", available in Amazon
Also ask your Dr. about megadosis of intravenous vitamine C. It helped my sister along with chemo. She had no nausea nor sickness and 5 years after. No new growth!!
BEST WISHES & BLESSINGS 🙏 💕

You can reach 85 years or more!! 🙏 need lots PPF (PATIENCE PRESEVERANCE and FAITH).. You may want to read the book of a stage IV glioblastoma patient, who survived more than 20 years : "They call me a miracle" by Randy R. Harris with Carmen Rice", available in Amazon
Also ask your Dr. about megadosis of intravenous vitamine C. It helped my sister along with chemo. She had no nausea nor sickness and 5 years after. No new growth!!
BEST WISHES & BLESSINGS 🙏 💕

My wife has a stage 4 glioblastoma and really the only positive on genetic testing was that hers is GMGT methylated. That made her a good candidate for Temezolamide. She recently finished a six week course of the temezolamide along with 30 radiation treatments. She has been hospitalized twice; once for brain swelling that required some high dose steroids and she developed a blood clot in her lung just as she finished treatment. She is unable to walk unassisted and cannot speak more than a few words. Her symptoms don’t seem much better. Fortunately she has no pain. In three weeks she starts back on a higher dose of the chemotherapy medication for 5 days every 4 weeks. That will go for six months. Trying to stay optimistic but not seeing much improvement so far is discouraging.

My wife has a stage 4 glioblastoma and really the only positive on genetic testing was that hers is GMGT methylated. That made her a good candidate for Temezolamide. She recently finished a six week course of the temezolamide along with 30 radiation treatments. She has been hospitalized twice; once for brain swelling that required some high dose steroids and she developed a blood clot in her lung just as she finished treatment. She is unable to walk unassisted and cannot speak more than a few words. Her symptoms don’t seem much better. Fortunately she has no pain. In three weeks she starts back on a higher dose of the chemotherapy medication for 5 days every 4 weeks. That will go for six months. Trying to stay optimistic but not seeing much improvement so far is discouraging.

My wife has a stage 4 glioblastoma and really the only positive on genetic testing was that hers is GMGT methylated. That made her a good candidate for Temezolamide. She recently finished a six week course of the temezolamide along with 30 radiation treatments. She has been hospitalized twice; once for brain swelling that required some high dose steroids and she developed a blood clot in her lung just as she finished treatment. She is unable to walk unassisted and cannot speak more than a few words. Her symptoms don’t seem much better. Fortunately she has no pain. In three weeks she starts back on a higher dose of the chemotherapy medication for 5 days every 4 weeks. That will go for six months. Trying to stay optimistic but not seeing much improvement so far is discouraging.

My wife has a stage 4 glioblastoma and really the only positive on genetic testing was that hers is GMGT methylated. That made her a good candidate for Temezolamide. She recently finished a six week course of the temezolamide along with 30 radiation treatments. She has been hospitalized twice; once for brain swelling that required some high dose steroids and she developed a blood clot in her lung just as she finished treatment. She is unable to walk unassisted and cannot speak more than a few words. Her symptoms don’t seem much better. Fortunately she has no pain. In three weeks she starts back on a higher dose of the chemotherapy medication for 5 days every 4 weeks. That will go for six months. Trying to stay optimistic but not seeing much improvement so far is discouraging.

Sending positive thoughts your way. What were her symptoms from brain swelling that you knew to taker her to the hospital? My son is grade 4 brain tumors also with methylated cells. He just finished 30 radiation treatments and will be starting temezolamide

Hello,

I'm going through the same treatment, I'm down to the last 5 days as of yesterday. Not sure what will happen after last treatment. I know the doctor will request another MRI to compare with prior tests and I have some blood work to do at the end of the month as well. I've been researching other treatment options too. Time will tell...