What is your daily exercise routine? Walking even a little bit seems to help. Do you take any supplements like vitamin D? Have you had your B vitamin levels checked or iron? I see a holistic/integrative Dr along with a pulmanologist. All of these can affect energy levels. I am a petite person and I've found eating smaller amounts of nutritious foods 4-6 times a day (like every 3-4 hours helps with a lot of things. Keep posting. I am newly diagnosed