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Thank all of you for the most informative discussion here.
I am currently seeing a pulmonologist at Mayo Clinic, Rochester, MN
who finally gave me very specific details on Airway clearance with nebulizing 7% saline while using a an Aerobika device. I also begin the nebulizing with Albuterolto open the bronchial tubes.
I was diagnosed over a year ago with BE and MAC from docs in Duluth , MN, Essential Health and after coughing up some blood a couple of times started the Big 3 antibiotics 6 months ago which I would like to get off of now that my sputum is showing negative for MAC.
Has anyone been able to get off of the antibiotics if you are doing saline airway clearance regularly or do I strictly have to take them for a year after a negative result?
Thank you all for your very helpful experiences!
Has anyone stopped
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I did 13.5 months of antibiotics(no rifampin due to thrombocytopenia reaction after 1.5 months). Mac has not returned and it has been almost 3 years. I continue with 1-2x dailyACT and 7% saline nebs and guafenesin. Sorry to say BE has worsened(will see pulmonologist in 2 weeks to find out why coughing is worse ). Added albuterol to regimen which has “helped”. Hoping new medication for BE will come on market.soon.