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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)

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@polly08

Annie, one of the problems I’m having with my husband is nutrition. He has CKD stage 3 so e have to watch his protein, potassium, phosphorus and sodium intake, he lost 23 lbs and a lot of that was lean muscle as I’ve read happens to a lot of folks. The problem is not to just gain weight to get stronger but LBM is so important not to just gain back fat. I have read plant protein is better for folks with CKD but I’m not sure if that’s true and several articles I’ve read suggest 3,000 to 5,000 calories a day to regain strength and endurance, with great percentage being protein and healthy fats. Most of the discharged ICU patients are sent to inpatient rehabs and later home based rehab programs but we don’t get guidance about nutrition and most primary care doctors are not familar with the dietary needs of PICUS folks. I’m sure there are others with specific dietary needs, diabetics and others I feel is a need for after support

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Replies to "Annie, one of the problems I’m having with my husband is nutrition. He has CKD stage..."

@polly08 you and your husband are not alone in trying to manage diet with chronic kidney disease. There are several members sharing about exactly that in the Kidney & Bladder group on Connect here: https://connect.mayoclinic.org/group/kidney-conditions/tab/discussions/

Here are some specific discussions that might be helpful:
- Oxalates in food https://connect.mayoclinic.org/discussion/oxalates-in-food/
- 3rd stage kidney disease and diet https://connect.mayoclinic.org/discussion/3rd-stage-kidney-disease/
- Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD) https://connect.mayoclinic.org/discussion/confused-about-stage-3-ckd-diet/

I encourage you to read and join in one of these discussions