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sandramgus avatar

Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: Aug 10 10:24am | Replies (136)

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Have you had a bone marrow biopsy done? I have had Primary Amyloidosis for 3 years. It was not detected in any blood tests. I was anemic and bleeding and bruising easily, so my hemotologist did a bone marrow biopsy and that is where the Amyloidosis was detected.
It's been a roller coaster ride, but I am alive and have good quality of life. Best wishes to you. Please don't let the Amyloidosis go untreated.

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Replies to "Have you had a bone marrow biopsy done? I have had Primary Amyloidosis for 3 years...."

No, I have not had a bone marrow biopsy. I have been going to all kinds of Dr’s. My liver enzymes, AST, bilirubin, ALT have all come back abnormal. I’m having a CAT on my liver. I’m not going to let this go untreated. I really feel it is Amyloidosis. I’ll get to the bottom of this. Thank you for responding to me.