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arooney33 avatar

Newly Diagonised CLL in March

Blood Cancers & Disorders | Last Active: Jul 23 2:53pm | Replies (25)

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Hi @arooney33,

I am so sorry to hear of your experience to date. I was diagnosed with Diffuse Large B-cell Lymphoma (DLBCL) in December of 2023 after being ill for many months. By the time of diagnosis, I had multiple tumors in my body as well (stomach, lungs, brain). Because of the brain tumors, mine was also classified as CNS lymphoma.

I received 4 rounds of R-Chop therapy and 4 Matrix treatments at Mayo Clinic to target the multiple tumors. I had great results with this treatment and have been in remission for a year now.

I know it can feel overwhelming at diagnosis with so many areas in the body affected. I remember how initially overwhelmed and exhausted I felt with the information after being so sick for many months before diagnosis. But I also had an immense feeling of relief that someone knew what was wrong and that there was a treatment for it.
So try to remember it can get better with the right treatments.

Please know I am wishing you all the best with your treatment and recovery. We are all here supporting you.

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Replies to "Hi @arooney33, I am so sorry to hear of your experience to date. I was diagnosed..."

Thank you! The MRI’s did show bone cancer as well. Trying to stay positive
and meeting with Neurosurgeon on Tuesday. Just would like to know what the
primary cancer is but I know in time I will get some answers soon. Just so
overwhelmed right now. Have a wonderful weekend!

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