Doctors claim oxycodone exacerbates pain but nothing else helps

Posted by Jenny @fairymystry, Jun 12 12:12am

Hello. I have reached out to the forum before on behalf of my best friend with chronic pain and I am back again with another query....
My best friend had yet another upper endoscopy today to attempt to find a cause for the constant and intense abdominal pain that she suffers. She has a long history of food allergies, gastroparesis & other gastro issues spanning most of her 49 years but, several years ago she began a cycle of getting pancreatitis repeatedly with 6-12 months in between. The abdominal pain has never gone away & is so intense that she can no longer work, especially since she had a nerve block a couple of years ago that she claims actually made it worse. She now relies heavily on the oxycodone & it doesn't take her pain completely away but she is able to function at least. It is the ONLY thing that seems to work for her and she hates it because of the side effects.
Today after the latest endoscopy, this doctor joined a series of docs that have suggested that the oxycodone she takes to relieve the pain is actually exacerbating the pain and that she should consider getting off of it. The doctor that renews her prescription for it monthly doesn't seem to see that as an issue & my best friend doesn't know what to do because of course she'd love to get away from the oxy but the pain is too intense without it and no one seems to have an alternative for her.
I guess I came here to ask if anyone else has heard that the opioid they take for pain may be making it worse & if there are non-opioid alternative that actually work for this type of pain.

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Profile picture for mebdeb @mebdeb

Yes, I have been told the same thing and in my experience of having to deal with what I call "fire pain" since '06, all my many pain clinic docs are incorrect, imo. The main problem going on in cases like this is that the docs will not prescribe more adequate pain meds because of all the drug abusers and now the Feds won't let the docs properly help all of us suffering with severe chronic pain unless your a dying cancer patient. I'll call this and say this is my opinion, but I know it to be true, imo.
MEB

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This is what happens when government gets involved in (between) Dr. and patient.

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Profile picture for vicscats @vicscats

How does suboxone make you feel. I’m concerned about being drowsy from it? Have you ever taken OxyCodone?
If so how do they compare with pain control?
I too have a multitude of chronic pain conditions. Spine/ graves/ diabetes
IYIYI
Look forward to hearing from you.

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I took Suboxone for my chronic pain from DDD for over 10 years. It worked great, was easy to get compared to the way they treat opiods today. However, my pain eventually got worse and now on Fentanyl patch. The good thing about it is it seemed to work fine at the same dose for over 10 years. Opiods cause us to build a tolerance to them, we'll require more and more to get the same relief...if you can avoid this, DO because today the Dr.s cannot treat their patients based on what's best for the patient, they have the government strictly monitoring them and t he restrictions are GOVERNMENT imposed...NOT necessarily what your Dr. thinks is best for you. Maybe when enough of the moms, brothers, sisters and kids of these legislators get denied treatment or under treated)for their pain....maybe things will change. For some reason folks who suffer the most with pain just...suffer. It seems nobody is "fighting" for PATIENTS rights, but for drug addicts...who have a much easier time getting drugs on the street than we do in the pharmacy.

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@fairymystry you should consider using buprenorphine patch which provides 24/7 pain relief instead of oxycodone. The doctors are correct the drug is most likely no longer efficacious and is making her sicker. It’s certainly doing a number on her gut taking into consideration all her other conditions too. This might help too. https://pmc.ncbi.nlm.nih.gov/articles/PMC4675640/
Since you didn’t mention it I presume she’s not a surgical candidate? She might also consider seeking care at a major medical center with many options.

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Profile picture for vicscats @vicscats

How does suboxone make you feel. I’m concerned about being drowsy from it? Have you ever taken OxyCodone?
If so how do they compare with pain control?
I too have a multitude of chronic pain conditions. Spine/ graves/ diabetes
IYIYI
Look forward to hearing from you.

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I have just begun taking Suboxone and am currently titrating up to a dose that I can both tolerate and will help my pain.
Suboxone is actually a medication used to get people off opioids without experiencing withdrawal, but is used off-label for pain control. It works with some patients.
I’m hoping the Suboxone will help me. So far I am taking just a small piece of a pill three times a day, but I should be taking a stronger dose soon.
I am hopeful that the Suboxone will help my pain.
I suffer with extreme lower back and leg pain and have for many years.
Hydromorphone helped for a while but I developed a tolerance to it and it stopped working.
50 mcg of Fentanyl does nothing.
Gabapentin helps the neuropathy in my feet a bit.
I will keep you posted.

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Wow,do you have to stop oxycodone before taking Suboxone?

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Profile picture for vicscats @vicscats

How does suboxone make you feel. I’m concerned about being drowsy from it? Have you ever taken OxyCodone?
If so how do they compare with pain control?
I too have a multitude of chronic pain conditions. Spine/ graves/ diabetes
IYIYI
Look forward to hearing from you.

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I'm so sorry for the delayed response. I have taken oxycodone in the past (years ago) but at that time I was struggling with addiction. I always felt like I needed more and more since my tolerance kept increasing. I found that I do way better on Suboxone. It helps with my pain and it has a half life so it stays in your system longer which is good for easing my pain. J definitely still feel pain but it's normally at a manageable level. Also I personally think it has less side effects. The withdrawal from it is way longer than oxycodone is. It's reallmh6 the n

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Here are my suggestions. I’ve taken Percocet for 20 years and recently switched over to the same amount in the form of oxycodone. The Tylenol in the Percocet was irritating my gastrointestinal track, and my urethra so I gave myself a break and just take the same amount in in the oxycodone without the Tylenol. It’s a little less effective because the Tylenol gives the extra boost in a non-narcotic way.
From what you said the first thing that occurs to me is your friends not drinking enough water. Have her try a lot more water and take it with food. The second thing is to make sure your friend doesn’t have a lactose intolerance because guess what the oxycodone has lactose in it! You didn’t say how much your friend takes, but it doesn’t take much to get stomach aches and damage your stomach, intestinal track from having lactose when you are intolerant and may not know it. Recently I was switched from the pink pill to the white pill and the white pill gave me stomach aches, and the pink pill didn’t. The white pill probably has More lactose. So now I drink more water and take with food and made a big stink so I could get the pink pills. We better face it. We’re getting cheaper drugs and they are gonna cause consequences if you happen to have lactose or gluten intolerance so you’re going to need to check your medications and maybe take lactase pills with it. So please tell your friend to start taking lactase pills and then see if her ailments are any better if so, it might mean that she’s lactose intolerant and doesn’t realize it. Lactose intolerance and gluten intolerance extends to our medication and nobody looks at our profiles, even if we do have it in there. When I get stomach aches after my diet has been clean (I’m on the FODMAP diet at Monash university for six years (it’s free), which solved all my IBS problems with food. It didn’t solve it with medication’s. There’s also something called SIBO small intestinal bacterial overgrowth. Your friend needs to be tested for that. I went to two gastroenterologist, and they were completely useless when it came to the kind of problems I was having with diet. All they want to do is test for finding tumors and physical obstructions, but the pain you have from improperly digesting foods and medicines can be just as painful. Again, let me reiterate telling your friend to take extra fluids for a while and a little food with her medication and getting the test for SIBO and looking at IBS and other food intolerances might go along way to healing her. As well as there are great acupuncture and deep tissue massage treatments, which go along way to relief in the interim good luck.

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Profile picture for elainestewart48 @elainestewart48

I have just begun taking Suboxone and am currently titrating up to a dose that I can both tolerate and will help my pain.
Suboxone is actually a medication used to get people off opioids without experiencing withdrawal, but is used off-label for pain control. It works with some patients.
I’m hoping the Suboxone will help me. So far I am taking just a small piece of a pill three times a day, but I should be taking a stronger dose soon.
I am hopeful that the Suboxone will help my pain.
I suffer with extreme lower back and leg pain and have for many years.
Hydromorphone helped for a while but I developed a tolerance to it and it stopped working.
50 mcg of Fentanyl does nothing.
Gabapentin helps the neuropathy in my feet a bit.
I will keep you posted.

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Did they suggest you take Suboxone for your pain? or are they simply taking you off the pain meds with it? I also now have a Fentanyl patch 50 mcg, it helped at first but not anymore.
Please let me know how the Suboxone works, and is your pain Dr. prescribing it? Here in California I have learned that the Paid Dr.s don't use Suboxone, only certain Dr.s who get people off of opiods. I would have loved to stay on Suboxone...I was taking 2 sublingual strips per day (my Primary Dr. prescribed it) which I think is the maximum.

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Profile picture for lucasmom @lucasmom

Did they suggest you take Suboxone for your pain? or are they simply taking you off the pain meds with it? I also now have a Fentanyl patch 50 mcg, it helped at first but not anymore.
Please let me know how the Suboxone works, and is your pain Dr. prescribing it? Here in California I have learned that the Paid Dr.s don't use Suboxone, only certain Dr.s who get people off of opiods. I would have loved to stay on Suboxone...I was taking 2 sublingual strips per day (my Primary Dr. prescribed it) which I think is the maximum.

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Don’t know if you are talking about subono whatever it is, but there is nothing worse than constant pain.

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Profile picture for cperlin @cperlin

There are so many treatments for chronic pain that are natural and effective that doctors will never tell you about because they don't know about them. A key one is addressing the mind/body connection because stress and unresolved trauma is a key factor in chronic pain and chronic illness, both as a cause and as a factor in keeping it going however it started. There are also herbal and nutritional therapies, electrical stimulation therapies, biofeedback, neurofeedback, hands on therapies including acupuncture, massage, physical therapy and chiropractic, medical marijuana and kratom, pulsed electromagnetic field therapy, red/infrared light therapy and even more. Learn about these therapies at http://www.paintreatmentdirectory.com.

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I have tried all,but oxycodone works. Some people. E
Need it 3 surgeries and 35 epidurals plus all those you mentioned did not help. Do not feel guilty about opioids.

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