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Profile picture for benniej23 @benniej23

Hi Shelly61,

Welcome to the group, you will find a lot of support here. Where are you located in NC? I'm in the Charlotte area and I see Dr. Daniel Howard at Jan & Ed Brown Center for Pulmonary Medicine. He's been great so far. I started on the Big 3 meds last December and I have very little side effects. Like you, I was terrified about starting them. I was super worried about the digestive issues because I have GERD, and the vision issues. I go see an ophthalmologist every 6 weeks to make sure my vision hasn't changed. I have been pretty lucky with the digestive issues, I get occasional diarrhea on the days I take the meds. I'm also extra tired, cat naps during the day and it helps.

There is a NTM/Bronchiectasis Center at UNC Chapel Hill that has excellent doctors if you are close to that area. I live too far to be able to make regular visits.

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Replies to "Hi Shelly61, Welcome to the group, you will find a lot of support here. Where are..."

Thank you @benniej23
I am not far from Charlotte and actually had my Bronchoscopy where you go.
I am so glad to hear you are doing well with the meds. Does your doc also recommend airway clearance? I am reading a lot about how important that is on this site but my Doc has not said anything about it. So nice to chat with a local too. I felt like I was the only one in NC with this.