I'm sorry that you all are dealing with such pain. I have different types of pain, but one thing I've been able to do was find and adopt a few tools to communicate "better" with doctors. I put better in apostrophes to indicate that it's a relative "better" - taking on some of their language rather than bringing them to yours.

One is I found this pain scale - I like it because a numbers only scale never worked for me. It uses words to describe the pain, using concepts related to what's called "activities of daily living" - https://myhealth.alberta.ca/Health/pages/conditions.aspx; I print it out and bring it with me to the doctors appt so they can see what I mean.

In other words how is it affecting your ability to conduct your life. Things to consider are nicely discussed here: https://www.eastridgeatcutlerbay.com/2024/01/19/what-are-iadls-vs-adls/