Has anyone found a treatment that helps with peripheral neuropathy?
I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.
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I have had ideopathic small fiber neuropathy of feet for 18 years. It progressed in many different stages, Unfortunately walking for more than 10 minutes is very painful as is standing. I have tried everything recommended but stil am suffering. A coupe of the standard treatment (lyrica and gabapentin) have caused an anaphalactic reaction. There a and re many different forms caused by many different causes, some unknown as of now (me). I am glad exercise and acupuncture work for you. I hope you have found the best solution, You are lucky.
I have Polyneuropathy. I cannot take the usual drugs ie. Gabapentin because they put me to sleep. So, I don’t take any medication for my PN at all. When things start annoying me I rub crème with lidocaine like Aspercream on the area. That helps.
My nerves were damaged from a lack of blood because my arteries got inflamed by a rare autoimmune disease.
Please don’t get fooled by what you see on YouTube and television wherever else you’ve got people trying to sell answers to your pain from neuropathy. especially if you see one that says he’s a doctor, and most likely he owns the business so you could check on that I’ve seen that happen several times where this doctor comes on and swears that his patients take it and they’re doing quite well and that we should take it too. It turns out that he owns the company and is making a profit off of people in pain. Don’t believe it, not for one minute.
Basically the truest statement on this site. We can only hope for drug research so that our type of PN can be treated at least to stop progression. CDIP does have a new effective drug; Hytrulo by Vvygart. But this is a difficult type to diagnose and is the worst kind. Most neuropathy is idiopathic peripheral neuropathy; small axon.
Scotch works just fine.
I’ve had Small fiber Neuropathy for 3 years. Idiopathic but probably linked to autoimmune response. I’ve seen a few neurologists some professors in their field . They all say the same thing. There is NO cure. These snake oil cures are just that. They will take your money willingly but rest assured if there was a cure the medical profession in many countries would be onto it big time.
I have been told alcohol sugar empty carb stress all aggravate the nervous system and there is clinical evidence this is so . So we are stuck with it but there is worse out there Motor neurone, Parkinson's , Multiple sclerosis etc etc so I think try to be positive live as well as possible with a good diet and allied health professionals to help with symptoms and persue the right meds to manage the pain.
Can one take B12 and Alpha lipoic acid together?
As I read they should be taken together on Google?
If you can throw some light on this.
Thanks regards
Arvin
Sorry meant NOT be taken together!!
Nortriptylene, R-Alpha Lipoic Acid, turmeric, and magnesium glycenate have greatly helped reduce the pain from my foot neuropathy. Exercise seems to help too, and I gave up alcohol two years ago.
I've been doing the Mike Kutcher senior seated 30 minute work out for a few weeks and it definitely helps the movement in my toes and feet. Also started taking Res-Q 1250 fish oil and that seems to reduce the inflammation. I can now wiggle my toes and spread them which I couldn't do for some time.
I discovered a supplement called PEA (Palmitoylethanolamide) after reading Dr. Jacob Teitelbaum’s book “From Fatigued To Fantastic.
I was still in a lot of pain taking Gabapentin and an opioid pain reliever. Once I added the PEA, my pain level improved greatly. I highly recommend anyone with PN check it out.