Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

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Profile picture for japanjim @japanjim

I read through the comments here, and find that I am in agreement with one thing that helps: Exercise.
I walk my dog. It got hot and she didn't want to walk much, and I noticed the pain and needles increased quickly. I now use an indoor treadmill.
I also started acupuncture. The research - as far as I can see - says it CAN help SOME people. I think that it has helped a bit, but I am not sure. And some insurance covers it to some extent.

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I have had ideopathic small fiber neuropathy of feet for 18 years. It progressed in many different stages, Unfortunately walking for more than 10 minutes is very painful as is standing. I have tried everything recommended but stil am suffering. A coupe of the standard treatment (lyrica and gabapentin) have caused an anaphalactic reaction. There a and re many different forms caused by many different causes, some unknown as of now (me). I am glad exercise and acupuncture work for you. I hope you have found the best solution, You are lucky.

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I have Polyneuropathy. I cannot take the usual drugs ie. Gabapentin because they put me to sleep. So, I don’t take any medication for my PN at all. When things start annoying me I rub crème with lidocaine like Aspercream on the area. That helps.
My nerves were damaged from a lack of blood because my arteries got inflamed by a rare autoimmune disease.

Please don’t get fooled by what you see on YouTube and television wherever else you’ve got people trying to sell answers to your pain from neuropathy. especially if you see one that says he’s a doctor, and most likely he owns the business so you could check on that I’ve seen that happen several times where this doctor comes on and swears that his patients take it and they’re doing quite well and that we should take it too. It turns out that he owns the company and is making a profit off of people in pain. Don’t believe it, not for one minute.

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Profile picture for cit10jetjockey @cit10jetjockey

Save your money. There’s no treatment for PN, and there will never be any. The nerves are damaged and they are not going to heal. If you have pain, drugs help, then there are others who have no pain, they just stumble around. All you can do is live with it as it will never get better.

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Basically the truest statement on this site. We can only hope for drug research so that our type of PN can be treated at least to stop progression. CDIP does have a new effective drug; Hytrulo by Vvygart. But this is a difficult type to diagnose and is the worst kind. Most neuropathy is idiopathic peripheral neuropathy; small axon.

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I’ve had Small fiber Neuropathy for 3 years. Idiopathic but probably linked to autoimmune response. I’ve seen a few neurologists some professors in their field . They all say the same thing. There is NO cure. These snake oil cures are just that. They will take your money willingly but rest assured if there was a cure the medical profession in many countries would be onto it big time.
I have been told alcohol sugar empty carb stress all aggravate the nervous system and there is clinical evidence this is so . So we are stuck with it but there is worse out there Motor neurone, Parkinson's , Multiple sclerosis etc etc so I think try to be positive live as well as possible with a good diet and allied health professionals to help with symptoms and persue the right meds to manage the pain.

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Profile picture for mikead63 @mikead63

For me, having been diagnosed with IPN in January, what has helped includes:
1. One prescription drug - Gabapentin - which I take 2-3 hours before bedtime;
2. Over the counter medications - R-Lipoic Acid, Magnesium Glycinate and a number of additional vitamins recommended by a number of top rated medical journals.
3. Exercise every day if even for 15 minutes. If you can, move your body, especially walking.
I didn't list the amount of the above medications because you need to start off slowly until you find the right dosage for you. BUT, let me make this clear - what I take has been a big help for me but I'm not a doctor and, what works for me doesn't mean it will work for you!
P.S. Don't waste your money on all the scams on the internet - No matter what anyone says - There is no cure. If there was, you would have heard that already from Mayo Clinic, Harvard Medical, Cleveland Clinic etc. etc,, already!!!

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Can one take B12 and Alpha lipoic acid together?
As I read they should be taken together on Google?
If you can throw some light on this.
Thanks regards
Arvin

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Profile picture for arv10 @arv10

Can one take B12 and Alpha lipoic acid together?
As I read they should be taken together on Google?
If you can throw some light on this.
Thanks regards
Arvin

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Sorry meant NOT be taken together!!

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Nortriptylene, R-Alpha Lipoic Acid, turmeric, and magnesium glycenate have greatly helped reduce the pain from my foot neuropathy. Exercise seems to help too, and I gave up alcohol two years ago.

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Profile picture for charliestephen @charliestephen

Nortriptylene, R-Alpha Lipoic Acid, turmeric, and magnesium glycenate have greatly helped reduce the pain from my foot neuropathy. Exercise seems to help too, and I gave up alcohol two years ago.

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I've been doing the Mike Kutcher senior seated 30 minute work out for a few weeks and it definitely helps the movement in my toes and feet. Also started taking Res-Q 1250 fish oil and that seems to reduce the inflammation. I can now wiggle my toes and spread them which I couldn't do for some time.

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I discovered a supplement called PEA (Palmitoylethanolamide) after reading Dr. Jacob Teitelbaum’s book “From Fatigued To Fantastic.

I was still in a lot of pain taking Gabapentin and an opioid pain reliever. Once I added the PEA, my pain level improved greatly. I highly recommend anyone with PN check it out.

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