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DiscussionCan anyone tell me about the Optune device for glioblastoma?
Brain Tumor | Last Active: Aug 31 10:36am | Replies (20)Comment receiving replies
Replies to "My husband has been wearing the Optune device for over a year (diagnosed with glioblastoma in..."
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@naoj I echo your statements, and our experiences seem very similar.
Novacure has been helpful, even after hours, and our designated rep checks on us every week or two.
I was concerned with the cost after our insurance changed, but they have a program, and we would only pay a tiny amount out of pocket.
The heat is the biggest issue we've found. Due to heat and perspiration, we sometimes change arrays twice a day. He works outdoors (in our yard! lol) all day, with a few breaks for nourishment and a nap.
Manipulating array placement helps with scalp irritations.
They provide a top-shelf scalp shaver, which is quick and easy to use.
We decided early to throw everything at GBM, including giving Optune a try for a couple of months before committing to it long term. You can discontinue using the device anytime after consulting with your doctor, so we gave it a go and will continue until it no longer fits either our lifestyle, our budget, or the standard of care.