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Hi I was diagnosed with MGUS last year by my neurologist. He sent me to my hematologist. He was checking my blood every 4 months and now when he checked it in Jan, everything was quite normal. He said he didn’t need to see me till next year.
I have been overweight and wanted to drop some weight. I went on Waygovy in February. I was losing weight and then began to experience frequent constipation and diarrhea. I stayed on it for a few months lost 14 lbs. I wound up with a flu and then the night sweats started. I went off Waygovy 2 months ago. I feel a lot better off it.
No more diarrhea. But I did notice I have a lot of back ache in my lumbar and upper back. Also every night now I wake up around 4am with a fast beating heart. I think the Waygovy brought on Amyloidois. I reached out to my Dr and he is on vacation so I went to another Dr to get some blood tests. My light free chain is elevated. I really hope I didn’t fast foward this blood disease with the Waygovy.
Replies to "Hi I was diagnosed with MGUS last year by my neurologist. He sent me to my..."
Have you had a bone marrow biopsy done? I have had Primary Amyloidosis for 3 years. It was not detected in any blood tests. I was anemic and bleeding and bruising easily, so my hemotologist did a bone marrow biopsy and that is where the Amyloidosis was detected.
It's been a roller coaster ride, but I am alive and have good quality of life. Best wishes to you. Please don't let the Amyloidosis go untreated.
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I don’t think there is any connection. I saw a recent study out of Dana Farber and Irene Ghobriel where that drug or a similar one turned out to be protective in MGUS patients.
There are many possible reasons your FLC may have gone up including an infection or other inflammatory cause.
The same is true for your back and heart rate. Don’t borrow “trouble.” But it is smart to get everything checked out thoroughly so you feel more relaxed.
I have had MGUS for 23 years and it has been a roller coaster ride. I have a different hematologist now and his “calmness” makes a difference.
Best wishes! You may never progress!