What's gonna happen w/ my decompensated liver disease?

Posted by countryg1 @countryg1, Jun 30, 2025

I've recently been diagnosed w/ decompensated liver cirrhosis, I'm doing an evaluation for liver transplant if i need it, so I'm on the list, scarey news I don't know what to do or expect, I gotta quit drinking, hard, I lost weight, legs n feet swollen, neuropathy in feet really bad, i get fluids on my stomach drained every week, what's gonna happen?

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Profile picture for craigcraig @craigcraig

You are doing the right things. We can relate as to how scary this is as we have been/are going through it too.
Great advice to stop drinking. That is really really hard at a time when you might go to it but cool, cool. Good for you ! Both my sister and a friend stopped and were much happier for it. And you have extra incentive. I had a full liver transplant a year and a half ago. Cancer caught by accident, 70 tests by insurance co locally and then 15 more by Mayo in AZ. Made the list and despite blood type I was called to fly down to AZ in less than a month. Could not go to the hotel, had to go straight to Mayo from the airport. Recovery was no walk in the park but doable. Almost 2 months living in a hotel in AZ. Trips to Mayo every other day for testing. At the hotel 6 Mayo liver transplant patients. At least one woman in each pair (patient & caregiver). The gals would meet at the pool after dark when it was cooler and share what was going on and some wine. They still keep in touch (4 in CA , 2 in CO) via text and report card is 4 are doing great, 1 ok out of the 6. Hang in there. Stressful and hard but everything is doable and you can do it !! Prayers up to you !!!

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Wow, glad u r feeling better now n ty

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Profile picture for mkh @mkhogan

Stop thedtinking with strong support. I was In same situation. O had to be in rehab program and show i was attending support meetings to be accepted to mayo. They do not accept if you aren't. I knew of another from my town who didn't quit drinking and is now passed. You wo survive if you do stop drinking. The good and very hopeful news for you is that you CAN quit drinking. Today we are lucky. Great medical support a great AA support. There are meetings in every town and country. Grab yourself a great AA sponsor and do everything your team of doctors. My doctor told me she had a team of people waiting for me when I was admitted to hospital. I had no idea what that meant. But 6 years later, I am sober, healthy and living a life I didn't dream I could have and ENJOY without alcohol. It is doable. Keep the hope a grab hold of those supports.

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That's great, n ty

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Profile picture for cbou @cbou

Sorry, I’m new. I just realized you were referring to someone else, not me. My bad! Take care!

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All gd, n gd luck

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