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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: May 22 3:02pm | Replies (598)Comment receiving replies
I hope to get some help, I have been getting a lot of pressure in my head which doctors says I have pressure headaches but they don't go away, it just sits there not moving....feels like a rock laying and waiting for me to miss up.
I have trouble concentrating and I'm also in college on line, and with this problem I have to get off the computer till the pressure subsides. Then I have days that I forget where I put something. Example: I would lay my glasses on my desk, and they won't be there, and after I'm done looking for them, they would be in front of my computer.
This becomes a nuisance, and I can't remember anything that happened after 2012, any thing before that I'm good, now I have to right everything down.
Can someone help me to figure out what's the cause of this.
Replies to "I hope to get some help, I have been getting a lot of pressure in my..."
@david33 What you are describing sounds familiar to me. The pressure in your head may be migraines and you should describe them to your doctor to see if you can get some help for them. The confusion and forgetfulness may be a secondary component of a migraine. Again, you need to talk to you doctor about this. I suggest you keep a diary of your day to help you remember to report things to your doctor and aid in figuring out what is exactly going on for you. I had an extended migraine that put me in the hospital on heavy doses of steroids and morphine. Since that time I have the same forgetfulness and loss of memories. I have not lost all memory for the amount of time you have, but there are periods that I just cannot remember. My husband recently showed me a log he kept for a few days after my transplant surgery that explained quite a lot for me that I simply do not remember. I do comprehension-building exercises every day by completing crossword puzzles from several different places and researching quite a bit on the internet. Maybe some of those things will help you also. If you can become a person of habit, such as always putting your glasses in the same place, always brushing your teeth after meals, always checking your meds before breakfast, etc. that may help with your forgetfulness. I find I need to do this because I really have trouble with short-term memory. If I deviate from my normal patterns it gets worse. For example, if we travel I have to determine my travel locations or I can't find my glasses, medications, phone, comb, etc. You know, it really is invasive. One way I live with it is to consider my life an adventure. When I can't find or remember something it becomes a scavenger hunt to find it. I do ask for help if it becomes important, but it is so much more fulfilling when I can finally find it myself -- and remember why I put it THERE! lol Bless you on your journey and I hope you find some help. Cognitive testing might be appropriate for you also.
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@david33
Hi David, I also hope that we can find some support for you from others who are experiencing similar symptoms. I noticed in your autobiography that you have experienced a significant fall, and head surgeries. That is why I am going to provide the link to the Brain and Nervous System Group where you might find a larger group of people discussing similar situations.
https://connect.mayoclinic.org/group/brain-and-nerve-diseases/
Of course, you will still be able to receive and respond on this discussion, too.
Rosemary