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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: Sep 5 2:05pm | Replies (98)

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Profile picture for sisterneedssamiracle @sisterneedssamiracle

It is with a broken heart that I send this message to you. It appears you may have TTP, which my sister was diagnosed with 5 weeks ago, following a seizure and a platelet count of 5 when she was admitted to the hospital. She received, among other cancer treatment drugs, rituxan, and underwent blood transfusions and plasma exchange daily. Sadly, they could never get her platelets above 20. The last drug a dr convinced us would show promise until they received the adamts13 enzyme, was vincristine 2mg. It devastated her body and ended her life within 36 hours. Her funeral is on Friday. She was 56. Our pain is immeasurable. What we have learned is to never simply acquiesce to any Dr's medical opinions when offering treatment options. Do your homework, read up on drug side effects, clinical trial results and be your advocate when it comes to decisions regarding your life. I pray your future holds recovery for you. My beloved sister is gone and I am left broken and distraught with grief.

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Replies to "It is with a broken heart that I send this message to you. It appears you..."

I am so sorry to hear this news. It sounds like she was critically ill at the time the new drug was introduced. There is no way to know if not giving it would have slowed her decline. It is a shame this whole platelet issue wasn't caught much sooner. My deepest sympathy to you and your family.