AML, age 78, taking Decetabine/ Venetoclax, no transplant

Posted by lindagi @lindagi, Jun 30, 2023

I am a 78 yrs old with AML and opted not to have a bone marrow transplant due to my age. I have been in remission for 16 months thanks to regular cycles of Decetabine (infused, brand name Dacagen) and Venetoclax (orally, brand name Venclexta ). Anyone else on the same regime? Would love to hear your experiences and share mine.

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Lori, Volunteer Mentor | @loribmt | Jun 30 8:54pm

In reply to @terdor "Hi Lori, wanted to update you on David's Leuprolide for prostate cancer. His recent PSA showed..." + (show)

Hi @terdor. Well, that’s some pretty encouraging news about your husband’s PSA results! I’m sure that goes a long way in boosting his morale!
I think he was going to be changing up his treatment for AML from Vidaza alone to Decitabine/Venetoclax. How has that been working for him? Has he been able to get by with fewer transfusions?

bettersleep68 | @bettersleep68 | Jul 1 5:59pm

74 with aml ..had five.cycles of vidia and po meds every day..how long did it take you to get into remission

bettersleep68 | @bettersleep68 | Jul 1 6:01pm

Would like to know it took you to be remission..I am doing the same meds as you ...anyone information would be helpful

lindagi | @lindagi | Jul 4 7:20am

In reply to @bettersleep68 "Would like to know it took you to be remission..I am doing the same meds as..." + (show)

H,Sorry for the delay in responding. I am now getting treatment every 5 weeks instead of 4. Now on 3 days of dacigen infusion instead of 5. That week I take Venetoclax 100 mg for 7 days. I am in complete remission according to my bone marrow biopsies which they do every 6 months and weekly blood work.
Let me know if you would like more info. I wish you well on your AML journey.
Linda

lindagi | @lindagi | Jul 4 7:22am

In reply to @lindagi "H,Sorry for the delay in responding. I am now getting treatment every 5 weeks instead of..." + (show)

Hi, I forgot to say that I went into remission after my first round of treatment.
Linda

bettersleep68 | @bettersleep68 | Jul 4 10:35am

In reply to @lindagi "H,Sorry for the delay in responding. I am now getting treatment every 5 weeks instead of..." + (show)

Thank you for the reply. My blasts went from 40 to 30..I was disappointed..I take venetoclax 100mg daily and vadia infusion every month.f5 doses into abdomen ow did you feel when you went into remission ..I hope I can achieve remission soon
Thanks again for your reply and havr a great weekend

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