Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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Profile picture for gravity3 @gravity3

Our bodies are all spectacularly different. One woman's poison is another woman's salvation.

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Exactly. These meds work for most people, but some people do have bad reactions.

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Profile picture for gravity3 @gravity3

Our bodies are all spectacularly different. One woman's poison is another woman's salvation.

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Not just women! I am a 68 male that they say I have that osteoporosis and last June 2024 and have had awful pain in both shoulders and left foot since that day. My endocrinologist say it’s not from the Reclast, I say, no more until you prove me wrong. Also had flu like symptoms and the pain at times is so bad I can’t hold my food down. 12 months later, I’m finally able to sleep through most of the night. My endocrinologist has set me up with a Rheumatologist , 01/29/2026…..Really!

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Profile picture for hlp123 @hlp123

I understand how you feel. My reaction to Reclast is delayed for a month after I get it and then I have side effects of very painful joints on and off during the year. I apparently have to take it as the result of having had one year of Prolia. My best advise is to be sure hand drink at least 48 ounces of water the day before the infusion and make sure the doctor orders the infusion to be given slowly for one hour and that they flush the tubing afterward. Good Luck !
Let me know how you are doing !

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I will never let them put reclasp in me again. I think it triggered n autoimmune reaction. My hands swelled so large that they had to cut my rings off. It has been 3. Weeks and I am 90% better..just some joint pains and some muscle pains.

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Profile picture for vagirl57 @vagirl57

My doctor gave me a short prescription, 5 or 6 days, of Prednisone. It stopped the bone pain & it didn't come back.

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Good to know

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The dr. Will tell you it is not reclasp…ha
I think reclasp caused an autoimmune reaction..see a rheumatologist and not an endocrynologist.

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Sounds like prednisone helps

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Profile picture for gravity3 @gravity3

Our bodies are all spectacularly different. One woman's poison is another woman's salvation.

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Agree. Only acfew people like is have this teaction. Why not let reclasp people know my dr wont report it

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Profile picture for gravity3 @gravity3

Our bodies are all spectacularly different. One woman's poison is another woman's salvation.

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Agree. Hate it when drs don’t think you know your body

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Profile picture for kaybollinger79 @kaybollinger79

I will never let them put reclasp in me again. I think it triggered n autoimmune reaction. My hands swelled so large that they had to cut my rings off. It has been 3. Weeks and I am 90% better..just some joint pains and some muscle pains.

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I am so glad that you are feeling better. I also do not want to take Reclast, or any of the "bone medications" that are available. The side effects are too severe. I do try to live with the motto "Risk vs Benefit" , but I can't find an alternative. Is anyone taking "bio-identical hormones?" I have LCID, so I have been told that I cannot take estrogen, but I do not know what to do. I have had Shingles twice, and I react with many debilitating side effects from all of the vaccinations. I do not have any cartilage in my shoulders, but I am not well enough to have shoulder replacement surgery. I fell in February and am still recovering from multiple sacrum fractures. I have a history of rib fractures with out impact. I really don't see the best treatment for my future. Any suggestions? Thank you

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Profile picture for kaybollinger79 @kaybollinger79

The dr. Will tell you it is not reclasp…ha
I think reclasp caused an autoimmune reaction..see a rheumatologist and not an endocrynologist.

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Years ago family doctor recommended a bone growth like reclasp, one treatment and never again. I have seen pain management, chiropathic etc but not a rheumatologist. How did they help you with your bone pain. I have not seen a rheumatologist mentioned on this chat room before your post.

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