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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: May 22 3:02pm | Replies (598)

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@rckj

I have had multiple ER to ICU admissions with adrenal and septic shock (infection overwhelming my secondary adrenal insufficiency). I didn’t know about PICS until I read about it here but I have all the symptoms plus fear of reoccurrence, which is not unlikely. I don’t have a specific question but am looking to feel better and in more control of my fears. I understand what is going on but that doesn’t always diminish the symptoms. I traveled from my home on the east coast to Mayo in Rochester and received wonderful care, including treatment plans to minimize a reoccurrence. So far, 10 months without hospitalization, which is a record for what has been a 10 year chronic/acute illness. I am hopeful but always concerned about another life-threatening episode. Any feedback would be helpful. Thank you.

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Replies to "I have had multiple ER to ICU admissions with adrenal and septic shock (infection overwhelming my..."

Hi @rckj
You mention dealing with delirium. I'm tagging @marield65 to bring her back into this discussion. She was looking to share with others who experienced delirium.

I'd also like to connect you with @muriel66 who suffered from severe septic shock. If you click VIEW & REPLY in the email notification, you'll see Muriel's posts about her experience.

@colleenyoung, thank you for the connections. The repeated episodes of septic and adrenal shock as well as delirium have been hard. It will be great to share with others. I don’t know anyone who has been through these experiences.