My PNET was found 6 years ago and on 10/1/2019 I had Whipple surgery. I have scans every six months because I drive my oncologist crazy. I will NOT wait a year in between scans The earlier any NET is found is to your advantage. That’s my opinion.

Linda, Yes, I was also getting MRI’s every year and GA 68 Dotatate nuclear scans every 3 years. But now I am 18 years post op. My surgery was in August 2007. The tumors that are currently in there haven’t grown even a millimeter since 2017. Unfortunately Dr Norton retired about 5 years ago. My current doctor is George Poultsides. He was Dr. Norton’s surgery partner and knows what he’s doing. I personally am not afraid of these tumors anymore. Dr. Norton told me I don’t have to worry about metastatis until the tumors reach 2cm. I believe mine are well differentiated as many NET’s are. They did say to call them any time if I have symptoms. If I was nervous or terrified I have no doubt that they would scan me every year if I wanted it. Stress and cortisol weaken the body so I keep this in mind at all times and just enjoy every day I have. Helping other patients is extremely rewarding and I am here for anyone who wants to discuss it further. In my opinion, HOPE makes a huge difference and is helpful to the immune system. There’s a book called Molecules of Emotion written by a former NIH researcher that proves this theory.