← Return to PNET removed 2 years ago: Can it come back at another site?

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@tstern7

Thank you. My net specialists are oncologist surgeons at Stanford. And they said I don’t need another scan for three years because the nets are small and not growing. I participate in patient education seminars and have become somewhat of a “net specialist” myself. My endocrinologist doesn’t know a lot about PNET’s. There’s also a patient support group forming within the Seena Magowitz foundation. In September, they plan to start the neuroendocrine group. I’d love to have you join us. I am very optimistic like you but also a realist and I don’t write anything that is not information directly from a net specialist. This info about them growing back is a quote by Dr. Jeffery Norton, former chief of oncology at Stanford.

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Replies to "Thank you. My net specialists are oncologist surgeons at Stanford. And they said I don’t need..."

That's a very interesting and somewhat surprising approach by Stanford and very different from our experience when Norton did my husband's surgery 17 years ago. Even with stability the longest they would go between scans was one year and that was only after shorter intervals between scans.