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← Return to AML, age 78, taking Decetabine/ Venetoclax, no transplant
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AML, age 78, taking Decetabine/ Venetoclax, no transplant
Blood Cancers & Disorders | Last Active: Jul 4 10:35am | Replies (66)Comment receiving replies
Hi my name is Jacklyn and I have been diagnosed with AML progressing from CMMl. My first diagnosis 6 yrs ago was MdS low risk. My oncologist had put me on hydroxyurea a year ago and I did well. It brought my white count down to normal. But this year I did another bone marrow biopsy and it came back I have AML. My oncologist is meeting with the tumor board next week to discuss my treatment. She did mention something about 7 days on sounds like what you are doing. I am 77 so no transplant. Have you ever had itching from AML. They say the treatment will probably stop that. I take loratadine for. That and it helps a lot. I have a lot of fatigue as well. I would like to keep in touch with you. Lori has helped
Me a lot. She is a God sent.
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Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML. He started with Vidaza treatment (7 shots per month) over 3 months which showed no improvement. Oncologist changed his treatment to Decitabine (5x/month infusion) and Venetoclax taken orally initially for 14 days, then increased to 21 days a month in April & May. His last biopsy showed unremarkable results so oncologist decided to hold off treatment to give bone marrow a chance to recover. In the meantime he gets bloodwork done to monitor his blood levels and he's had to get a few bags of blood & platelets to compensate for low numbers. Although he has not experienced any itching or other major side effects, he's had mild edema on his lower legs & feet and does feel very tired most of the time which he takes naps for. We should know more by mid-July after another biopsy whether to continue or go to the next treatment plan. I wish you all the best, hang in there. Lori is a valuable support for everyone.