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Living with MDS (Myelodyplastic Syndromes)
Blood Cancers & Disorders | Last Active: Aug 30 4:21pm | Replies (229)Comment receiving replies
I am blessed God put you in my life. You don’t know how much it means to me to hear there are people doing well. You are also right about distracting myself. I worry more about my mental health and staying stable and free from anxiety. I lined up a few projects that
need to be done around the house. I live with my son and his 3 kids. Yep boys 5 and 6 and my granddaughter who graduated this year 16 and I was so happy I could attend. It so comforting to know I can reach out to you Lori. I feel now I just might be one of the lucky ones. I will just do my best and trust God. He got me this far.
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I am supposed to be starting the 7 3 chemo infusions in two weeks. I have to do a special blood test this week and see my oncologist. She said it’s not that bad. It’s not like the chemo I did for breast cancer 18 years ago. Sometimes it can make your counts go down at first and you might need blood transfusions. But the aim is to put the blasts in my marrow into remission even though my counts right now are good on the hydroxy. I am scared about all of this. Is there anyone here at 77 who has had positive results with this treatment. She said it’s not that might take 2 cycles. She will do a bone marrow after my first treatment to see how it worked.
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Hi Jacklyn. When dealing with my AML adventure 6 years ago I didn’t know a soul who was familiar with the treatment or outcome. I had great medical advice from doctors and my chemo nurses, but it’s not like being able to speak with someone who has actually walked the walk.
It’s so much easier to walk along an unfamiliar path if we have someone to help navigate or talk with as we face obstacles. So that’s why I’m here! I want others to know there is hope and will do my best to help make the journey easier. ☺️ I’m here for you anytime!
You have a great attitude with knowing it’s important to keep busy to help avoid anxiety and stress. Sounds like you have a lot of lively activity around you all the time and an awesome live-in support system. Kids will help keep you focused on what’s important, right? ☺️