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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: 16 hours ago | Replies (191)
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@jacklyn

I am blessed God put you in my life. You don’t know how much it means to me to hear there are people doing well. You are also right about distracting myself. I worry more about my mental health and staying stable and free from anxiety. I lined up a few projects that
need to be done around the house. I live with my son and his 3 kids. Yep boys 5 and 6 and my granddaughter who graduated this year 16 and I was so happy I could attend. It so comforting to know I can reach out to you Lori. I feel now I just might be one of the lucky ones. I will just do my best and trust God. He got me this far.

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Lori, Volunteer Mentor | @loribmt | 16 hours ago

Hi Jacklyn. When dealing with my AML adventure 6 years ago I didn’t know a soul who was familiar with the treatment or outcome. I had great medical advice from doctors and my chemo nurses, but it’s not like being able to speak with someone who has actually walked the walk.
It’s so much easier to walk along an unfamiliar path if we have someone to help navigate or talk with as we face obstacles. So that’s why I’m here! I want others to know there is hope and will do my best to help make the journey easier. ☺️ I’m here for you anytime!

You have a great attitude with knowing it’s important to keep busy to help avoid anxiety and stress. Sounds like you have a lot of lively activity around you all the time and an awesome live-in support system. Kids will help keep you focused on what’s important, right? ☺️

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